| | Joined: Jul 2008 Posts: 228 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jul 2008 Posts: 228 | It affects everyone differently. There are people that have problems from day one and then I didn't have problems until the last week. It just depends. I think on average, it starts bothering people around the 3rd week? But I would be prepared for any time.
Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.
**** Stephanie passed away 12.15.09.... RIP our dear friend****
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | That is so true Stephanie
Rob received the old fashioned rads to both sides and the front,and he was in trouble within a few days.His mind set was work all day,have his treatment late afternoon,rest for a while and back at it the next day.I think he managed to work for 4 days,and he managed to eat for one.It took us by surprise as we were ready for the three week wall ,but hadnt taken in to account his pale skin and red hair which didnt take kindly to being zapped .
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | We would have to have 2 competition categories: 1. Not Finished Tx Yet and 2. Post TX. There are other Categories we could have like:
Most water consumed in a day;
Least time to shave without a beard - male;
Most Gum chewed in a day;
Most time daily spent talking about cancer - non medical professional.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I get the mucous, just can't get it to come out. LOL That would be some tough spitting or should i say dribbling down the chin if lucky.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | The "Drug" testing standards would have to be tweaked a lil bit though. God knows what cocktails some of you could fire down them Peg tubes. LOL
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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