| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Minnie, its nice to hear from you. Best of luck with Friday's treatment, hope it doesnt hit you too hard. Its so hard going thru chemo.
Im really sorry to hear that there is still one spot left. At least the chemo has been working and has shrunk the tumor and your lungs are now clear.
You have always had such a positive outlook, glad to see you still do. Enjoy the cheering, thats always lots of fun. Sending positive thoughts and prayers your way.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Minnie-It always seems to hit the parents of patients so hard. Even my mom keeps talking about "miracle cures" for my husband. My father in law even went so far as to tell his sister that Neil didn't have cancer in his lungs anymore when that's not the case-he just had an infection there as well. I try to put myself in their shoes. it must be so hard to see your child battling this disease.
If its any consolation, Neil's hair is growing back quickly after he stopped the Taxotere. He was as bald as a billiard and now I think it's growing back thicker and darker. See-there is an upside to chemo!
Keep on cheering, Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Parents can be like that about all sorts of things. When I was visiting my mom a couple of weeks ago, even though she has had three years to get used to my swallowing problems, she kept forgetting and offering me food I couldn't eat! I just put it down to her wishing I could eat, and being a mom.
Minnie, it's great to see you writing here. I'm glad the first round of chemo got rid of most of the cancer and hoping and praying this next round gets rid of the rest and keeps it away for a good long time. Glad that you are getting out and doing the cheering in spite of everything and able to enjoy some of the summer.
The classes I teach don't start until next week but I have lots of extra prep going on for a variety of reasons and I am also assisting with student orientation which is over this weekend so it won't be a very restful weekend for me. So summer is over as far as I'm concerned and there is already a chill in the air in the mornings here.
I know a couple of people who said their hair grew back thicker and curlier after chemo and with no gray hairs. So hang in there. I'm keeping you in my prayers and sending wishes for complete remission and beautiful hair your way.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Way to go Minnie. Man I hope this stuff kicks your cancer back to the beginning of time. I hope your squad realizes what a great leader you are.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Minnie,
It's great to see you posting and I am so sorry to read how things look for the future.
If there is anyone that can prove the doctors wrong, it's you. I know that you won't give up and we will all be praying for you to have good results from your latest chemo.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Minnie, So glad to hear from you! I am glad you decided to have the extra treatments even though it took a lot of courage on your part. It will go away and no one can read the future, not even the doctors. You will make it through as you usually do! I bet it is quiet at home now, but you have your dog, as I remember, to keep you mucho company. We just joined a doggie park that is totally fenced six acres and it is the first time I could set my husky free!! I had so much fun with that! Dogs are such good friends to people. Please take care and enjoy your girls. This time of year is an exciting one for football and cheerleaders. Oh, those were the days! I will be thinking of you and hope to see you post again soon! You are so brave!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Minnie, You have been a pillar of strength and reason for many who have visited this site. I know for certain you inspired one Irish dentist cancer survivor to believe in the strength of the human spirit. It's great to see you posting and I am praying that your treatment is successful. Keep that everpresent positive inner fire burning. Hugs! Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | |
Forums23 Topics18,241 Posts197,124 Members13,309 | Most Online1,788 Jan 23rd, 2025 | | | |