| | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | Thanks all for so many replies/advice, thats wat i like about OCF , instant replies  atleast makes me feel am not alone. @Nelie : well My Oncologist had suggested to take him home when we are comfortable and hes all ok. infact hes ok now but just sometimes gets this fevers and infections and doc says its ok cause in his state the immunity is too low(not to forget he has tracheostomey which is like a gateway for all the infections) and even if someone sneezes outside the room he might get that infection.So he is always on a dose of antibiotics which rotates every week. Atleast till date the Insuarance companies have not cause any problems and they are really helpful (guess its because i have a Corporate policy )also the Doctors are very helpfull my oncologist and even the physician who visists my dad every day. @EzJim : when hes back to normal healthy sata we can suggest him your thoughs but as of now hes unable to walk around all by himself. Thanks for ur advice . @wallyswife : yes Ur are so true, One thing that i like about my dad is his courage he didnot complian even once during the treatment and even now. thats why i sometimes feel so sorry for him. about support group : well thats the sad part as i have already started a thread about "OFC in India" cause here we dont have such groups. Thanks for your advise . @Tracysdogs :yes even though hes on peg and gets feed evrey 2 hours, from mrng 7 to nite 11, if we ask him he says hes hungry. And the good part is hes already started to take in semisolid food.best part- he enjoys sweet :)So in between 2 hous feeds we try to give him food orally. @ChristineB :theres no councelor but the doctor who visits him every day is really good and makes him very comfortable he does a far better job in just 5 mins than we trying a day.about talking since he has his tracheostomy done talking is out of question for now. Again , Thanks all for advice. As for me today am goin to do some shopping. My list for shopping : 1. Playing cards. 2. Jigsaw puzzle. will see to it that i get one for children and one for grownups. 3. Some books for reading (he doent like reading much) but lets see guess worth a shot. Any other ideas fot the above list will really help. Also i talked to the doc yest : he said to boost his spirit dont treat him as a patient , just treat him normally.Dont make him lay on the bed all the time , make him sit on bed try different places, and the most difficult part he asked us to do is entertain him(trust me i kno my dad its really diff to entertain my dad). once again thanks all for the advice it helps alot.
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Go for a couple word search magazines and maybe a crossword book or 2. I do those and have a poker machine that cost $7 that I play a lot too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | Hey guys ! great news my dads feelin much better now and gaining alot of strength cause of Nourish and resourse not to forget every 2 hors feed... hes also improved on his atitude and does things like walking and moving around all by himself We are planning to get him home this week lets see wat the doc has to say now ....
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Avinash,
That's wonderful. I know you're excited. Keep it up.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Avinash, That's great news. I knew once he started feeling better his attitude would improve too.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Consuming 3000 cals a day did the trick for me to so lets hope he's over the hump and coming out of that dark tunnel.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tell your Dad we are proud of him and his courage.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | ^^^ thank u all Yesterday we celebrated the 50th day in hospital  half century as we call it here(cricket oriented country). Anyways the only concern now is , since hes feelin really good now and has gained lots of energy hes getting tired of hospital ... so wanna take him home soon. Thanks again .
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: May 2008 Posts: 6 Member | | Member
Joined: May 2008 Posts: 6 | How wonderful! You've brought a smile to my face! I'm gonna tell my mom she better keep takin the food down the peg!! Sometimes I get really down then I read good news like this and it brings me back up. Enjoy having your dad home.
Tracy
Caregiver to my 76 yr old mom
Supraglottic T3N0M0
PEG, No treatment yet we have to get her teeth pulled on July 14th
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Avinash
Thanks for the updates. Its always so encouraging to hear when someone improves. Wishing that your father gets stronger everyday.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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