| | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Eliz1
You should take your email address out of you signature as it can be found by spammers. People that wish to email you can just click on your name to find your email or PM you through the boards. (Things that the automated email gathering robots on the web cannot do.)
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Geez, why did your Mom go to Chian of all places when they can't even make a decent shirt or such. I am glad you got her to Australia and some dedent help. I will pray for the both of you and a few extra for the poor Chinese that have no choice. Give her my best and that goes for youi too. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Eliz, where are you from? Curious as to the world traveling to get help for your mother. There are many excellent cancer centers in the US. Is this product you are referring to approved for OC?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Christine -- Gendicine was discussed here in July 2007. The drug has not been approved by the FDA -- in fact, the FDA's refusal to accept an application for the drug (known here as Advexin) was apparently the primary reason its developer, Introgen, filed for bankruptcy a year ago.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Dec 2009 Posts: 6 Member | | Member
Joined: Dec 2009 Posts: 6 | Hello Christine
I'm from the UK. The US has great facilities (I suppose you have to have the right insurance?) I tried to get my Mum to go to a US clinic and she was scared of unknown costs , such as complications with surgery that could be above what we could afford. The Chinese experience ..was one I would not wish on anyone. We took some Gendicine back to the UK , and it's in my Mum's deep freeze next to the pork chops. | | | | | Joined: Dec 2009 Posts: 6 Member | | Member
Joined: Dec 2009 Posts: 6 | Hello Christine
Sorry forgot to answer your question ..it's not approved by the FDA (failed phase 111 trials I believe) but I think the European EMEA has taken it on for further testing ..could be wrong on that. The Chinese did approve it but then shot the guy who did so for corruption ..ho hum..
There is, I'm sure, some benefit in the drug. My Mum certainly had some, but it's very limited to tumours that you can physically poke with a needle. I think that doctors in Hong Kong can use it since they're now part of China. Would be interesting if HNSCC Drs there use it since they're a bit detached from Chinese Government. What now looks really promising is Reolysin from Oncoylotics .. I'm tring to get my Mum on trial for that in the UK. Will find out soon if that's the case ..all fingers and toes crossed. | | |
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