| | Joined: Nov 2007 Posts: 11 Member | OP  Member
Joined: Nov 2007 Posts: 11 | No, I'm not that close to Buffalo.
The doctors at Roswell Park recommended more surgery on my tongue and bilateral neck dissection possibly followed by radiation and chemo. I was impressed with both the facilities and the doctors. But getting scheduled for surgery there seems to be a completely different story.
Tinkerbell
SCC age 53 left tongue, floor of mouth, gums in 10/06, BOT 8/10. Never smoked, HPV-. Partial glossectomy 1/07. Additional tumors removed 3/07, 5/08 and 6/08. Surgery 8/09 w/graft. Cisplatin, Erbitux, Taxotere 1/10 Erbitux & radiation 4/10. Esophogeal stricture 8/12.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | It's great that you are at Roswell and being treated by a team of doctors. Remember that the squeaky wheel gets noticed. Be persistent about getting the surgery scheduled and then keep calling to try to get it moved up. It works.
Good luck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Nov 2007 Posts: 11 Member | | OP Member
Joined: Nov 2007 Posts: 11 | I was evaluated at Roswell Park and the doctors there have recommended another partial glossectomy, neck dissection and left mandible resection. They would also do a radial forearm free flap and instert a PEG. A recommendation on radiation and chemo would depend on the results of biopsy.
Tinkerbell
SCC age 53 left tongue, floor of mouth, gums in 10/06, BOT 8/10. Never smoked, HPV-. Partial glossectomy 1/07. Additional tumors removed 3/07, 5/08 and 6/08. Surgery 8/09 w/graft. Cisplatin, Erbitux, Taxotere 1/10 Erbitux & radiation 4/10. Esophogeal stricture 8/12.
| | | | | Joined: Nov 2007 Posts: 11 Member | | OP Member
Joined: Nov 2007 Posts: 11 | Jerry,
My surgery is scheduled for August 26.
Tinkerbell
SCC age 53 left tongue, floor of mouth, gums in 10/06, BOT 8/10. Never smoked, HPV-. Partial glossectomy 1/07. Additional tumors removed 3/07, 5/08 and 6/08. Surgery 8/09 w/graft. Cisplatin, Erbitux, Taxotere 1/10 Erbitux & radiation 4/10. Esophogeal stricture 8/12.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Just around the corner. That's great.
Good luck on Tuesday. We're here for you.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Also wishing you all the best on Tuesday. Please let us know how you are doing when you are able.
Will be thinking of you.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Aug 2008 Posts: 1 Member | | Member
Joined: Aug 2008 Posts: 1 | hello,
a canker sore is what led me to my dentist..it was so painful and it wouldnt go away. that same day i was at the perodontist he did a uv test and set up for a biopsy last thursday. I am waiting for the results. i dont know what to think. i smoked for 29 years and last year i quit smoking as a rememberance to my mother whom i lost in 2006(colon cancer). now look at me possibly facing oral cancer..what else could the spot be that my dentist saw ??? | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Marita,
Welcome to the OC site. It's best if you start your own thread but I'll answer this post quickly. There are a few things that could cause a sore in your mouth and if it's been there for a couple of weeks you should have it looked at by an ENT. The only way to determine if it's cancer is to do a biopsy and that would only be done if the doctor felt it was necessary. That's the short answer but if you don't feel like your questions are being resolved get a second opinion.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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