| | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Paula,
My heart goes out to you and your husband, you have been through so much. Praying for the best with you.
Deb
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Paula, I am so sorry to hear that news. I am praying for you and especially that he will get relief from his pain. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Paula, My heart is aching for you. That kind of news is so devastating-I know. How is your husband handling the news? They can be so strong it almost makes you wonder why YOU are upset. I wish I could say something to ease your pain. Know that there are people in the same boat and we can all paddle together. Best thoughts are going out to you and your husband. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | We just got home from all the PET's and meeting with the RAD Dr. Basically - the cancer is all over Jim, now. In his ribs, sternum, left femur, shoulder blades and up and down his spine. I am so upset - have been crying all day - the waiting rooms are so lonely and they treat you like a bunch of cattle. Jim of course is his stoic self and doesn't act like anything is wrong. You are right, Sue, he is so strong and I wish I wouldn't have crumbled like I did. They will radiate his back on Monday to give him some relief, and I'm sure they will hit him with some high power chemo - what are the side effects of Taxotere? Anyway, thank you all for your prayers....we need them.
Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | {{Paula}} <-- that's a cyberhug. I have no words to help with such devastating news but know that you and your husband are in my prayers.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Paula,
I am so sorry that you received such a report. G-d willing there will be releif for Jim's pain. Often we who are physically undergoing these ordeals accept whatever is necessary and do not realize that our family and friends are also suffering because there is nothing they can do but sit and wait and pray as we go through tests, treaments, surgeries, etc. Please try to have someone with you for moral support when you go with Jim on Monday. We here will be with you in spirit.
Praying for you both, Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Paula,
I am so sorry. If I can help in any way please ask.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Paula- The side effects my husband has experienced are nausea, exhaustion, and red eyes. He has just been given the pain patch to try and help with the pain he feels in his jaw. Please pm me if you need to. Our husbands are the same age and maybe I can help, even if you just need to vent. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Paula,
So sorry about the news. I will keep both you and your husband in my thoughts.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Dec 2006 Posts: 147 | Sue - what do you mean when you say pm me...I'm not real good with cyber stuff, but do know how e-mail and such...just not good with the abbreviations that our e-commerce systems use.
Did your Dr. give y'all a time frame like ours did or is this something that some Dr's give and others do not...
How does everyone deal with the unknown? Should I wait for him to bring up the future and get that talk out of the way, or should I....I just want to have the talk and then never discuss it again and enjoy what time we have left together. What does everyone else think?
Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
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