| | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | ^^ 9th week and still secretions?? tats scary ..... how do u manage it then ?suction machine ?
hoping the tracheostomy helps my dad...
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Haven't seen the word radical put in front of external beam before so I still don't know if he had IMRT but the word radical doesn't sound to good combined with radiation. Was he clamped down to the table and wear a mask?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | ^^^ now ur scaring me.....
yeah there was a mask but not sure bout clamping to the table.
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Not trying to scare you but the mask is standard with the IMRT treatment and after they put it on you they clamp it down to the radiation table to insure that you don't move the area targeted with the highly sophisticated radiation beam pathway.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | Something that helped me break down the thick mucous was rinsing my mouth out with a mixture of 1 tablespoon baking soda, 1 tablespoon salt, in 1 quart/liter of water. I would rinse constantly throughout the day and would go through at least 1 bottle of this mixture a day. I was told this mixture also helps keep the mouth clean.
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | @David : i confirmed it from the doc and my dad did recieve IMRT . @Tom : yes tats also good for my dad we use Betadine. Also the Tracheostomy did help my dad his Resp rate is normal now and also his heartrate is settling we will keep him in hospital for few more days so tat hes able to move around and then hopefully he'll b home 
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Glad to hear he had IMRT and glad to hear he's doing better. This Tx really does a number on us.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2004 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2004 Posts: 30 | The thick secretions could go on for quite some time. It was one of the worst side effects for my husband (2004). He found that sleeping w/ a humidfier helped a little and drinking water too. He went through a box of tissue a day trying to clear the secretions as he coughed and gagged them up. We would pull the stuff from his mouth w/ tissue many times a day. But it DOES eventually get better. | | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | ^^ u all are correct , his secretion levels have gone really down specially after the tracheostomy just twice or max thrice a day does he coughs and suction is done.
rite now its just the weakness hes coping with cause of the weight loss hes 4kilos underweight.
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Your dad will be fine. He is going thru what most of us here have gone thru. Like everything, it all takes time no matter what it is.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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