#74321 05-13-2008 11:38 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello friends,
I had the consult with the chemo oncologist and here is the plan. On the 23rd I will have my first round of chemo, five hours of taxtorate(sp??) and Cisplatin. Then 3 weeks later I will have the same two with F5U added. I'm having a port put in this week, not sure yet what day. Can I tell you that I'm scared to death of this chemo? Everything I've been through and this is the most fear of a treatment that I've experienced. I liked the doc, he was easy to talk to, kind, and to the point. He said I will lose weight and that I'll lose my hair. Yeah. It will be summer here so guess it's the best time of year to lose it. He also said there is a 60% chance of the tumor responding to the chemo. I didn't dare ask him what we'll do if it doesn't respond. I kind of already know........surgery and cyberknife radiation. Let's all keep our fingers crossed that the chemo works.
My mom arrived Saturday so the girls have additional help now. Last Softball game is Friday do I will be able to finish out the season! Camps and Clinics don't start until July so I'm hoping I'll feel better by then. The kids are taking it all pretty well, as is my husband. My second daughter graduated from College on Saturday, Regent University, Pat Robertson himself is the president.......man is he getting old! Another milestone I was able to be at. I'm a lucky woman.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Minnie
No-one can start a journey unless they take the first step, so Lady one step at a time.
With your family all supporting each other please take some serious time for YOU..
The odds the doc has given you are better than they would be in reverse order.. So forget the numbers and concentrate on getting through this as all of us here are certain that you can..
So Lady lets see you ready for a fight..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Minnie- Best of luck to you on this new leg of your battle. Hang in there knowing that lots of people are pulling for you!
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Minniea,
Lets all pray that this will be the end of it. You have been through a lot for sure so I know you will find the strength to get through this.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Minnie, I have you in my prayers . Like Helen stated, the 1st step has to be taken to make a journey. They said I would lose my hair, but here it is months later and I have an almost full head of hair. I don't have much to shave, but that makes it better. My wishes are with you .. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Minnie -- We are all here for you and know you will come through with flying colors. Don't fret statistics -- you are an individual, and you will beat this one just like you came through before. There are lots of people on this site who still need your support!! In the meantime, we are all there for you.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | I'm thinking of you Minnie and sending all the love and light I can to you. Helen
RHTonsil SCC Stage IV tx completed May 03
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Thinking of you Minnie. All of us here will be right behind you all the way. Not a fun thing but it is a must!! Take care and hugs to you!!  Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Minnie, we are all honored to walk this walk with you. Thanks for the privilege. We'll all be here, every step of the way, even when you don't feel like writing. Know that you will be in our prayers many times each day.
XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Minnie,
I think about you everyday and you are always in my prayers, as is your entire family. I agree, one step at a time.
Keep us posted.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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