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#74313 05-13-2008 08:22 PM | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | Dan has been complaining about an after-taste in his mouth from the PEG formula. He says this is why he's been nauseas more lately and he also says he is burping it... It is making him not want to take as many cans per day. It also makes his bowels loose...
He gets 2tsp of Reglan with each feeding and I have recently added an OTC generic acid reducer twice a day.
Any other suggestions?
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | ick. I remember that feeling! the flavor of the formula combined with the mucositis mucous taste was wretched. I feel for Dan...can you put in somethings that he likes the flavor of after a feeding? like maybe warm herbal tea w honey? . This was always comforting to me after the feedings and also the honey soothed my stomach a little and the honey was a little more like solid food- even if it was just a little it.  K
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Michelle- I know Neil had these same issues in the beginning but he got used to it and was able to take more cans without too much trouble. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | Try Vanilla extract flavoring. Doesn't take much. but it helped me. 18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Yes, I'd recommend adding some flavoring since you do get an aftertaste of whatever you flush down the PEG (unless your esophagus is totally closed up). The aftertaste never made me nauseated (but there were plenty of other things which did), but I would think any kind of flavoring--vanilla or orange or whatever he might find more palatable could help.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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