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Joined: Oct 2007
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Supporting Member (50+ posts)

Joined: Oct 2007
Posts: 83
Brian,
I guess it was this....
Synthroid Oral Side Effects
Symptoms of low thyroid levels include fatigue, muscle aches, constipation, dry skin, weight gain, slow heart rate, sensitivity to cold, or dry brittle hair that tends to fall out easily. These symptoms should disappear as your body adjusts to the medication. If they persist or become bothersome, notify your doctor promptly.

Headache, nervousness, trembling, sweating, increased appetite, diarrhea, weight loss or insomnia may occur. If any of these effects persist or worsen, notify your doctor promptly.

In rare instances, some hair loss may occur during the first few months of starting this drug. This effect is usually temporary as your body adjusts to this medication. If this effect persists or worsens, notify your doctor promptly.

Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.

Seek immediate medical attention if you have any of these very unlikely but serious side effects: chest pain, rapid or irregular heartbeat, shortness of breath, seizures.

An allergic reaction to this drug is unlikely, but seek immediate medical attention if it occurs. Symptoms of an allergic reaction include: rash, itching, swelling, dizziness, trouble breathing.

This is not a complete list of possible side effects. If you notice other effects not listed above, contact your doctor or pharmacist.

AND..that it would probably be a life time drug. I don't think I know anyone that is on it so I didn't know if any of the side affects were "real" or just cautionary.
I did know that if I asked here I'd get the straight 'poop' from folks in the know.
Thank you one and all.....I think I'll take her up on the script and give it a try.



Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
Joined: Sep 2006
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Man I hope I am on Synthroid for 50 more years. I would be as old as Jim.

Sorry Jim, just had to.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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This is a patient sheet for the drug. If you look in the PDR or get the doctor's package insert, you will see that the vast majority of these "side effects" occur in less than 1% of the population taking the medication, and many of them could not be attributed to the medication conclusively, as the number of those on a placebo reported similar instances/rates of the same symptom in tests blind tests.

"Remember that your doctor has prescribed this medication because he or she has judged that the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects"


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Gary,
I have been on this for over 30 years and have had the dosage adjusted up or down several times. It is very important to have regular blood work because the dosage must be varied precisely with the need and a slight change can have a big efect. When I was first on it I had problems because I did not go for the blood work. Once the dosage was cut, I was OK. It may require several weeks or even a few months for the thyroid function to level out. I can sometimes tell by a cluster of changes that I need a different dosage.
As Brian says, the side effects listed could be symptoms of various other situations and may be only temporary. Many of these are meerly an indication of a need for adjusting dosage and are only uncomfortable situations. "Notify your doctor promptly" because you may need to have the dosage changed.
You are probably in more likely to sustain a serious injury in your own kitchen or bathroom than you are to suffer from the possible side effects of thyroid medication. If you go back and read the list you will see that the more serious effects are ones for which you would seek immediate help anyway.

Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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