| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I never had the smell during treatment, but now I seem to have a strange odor most of the time. I liked the techs that did my rads and chemo. LOL I would have liked to bring a couple home. Just Kidding David
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
Have you had your yearly bath since Tx ended? We may not have to get to scientific to find that smell problem. I also had some attractive babes (no offense ladies) tending to me but I was to busy staying alive to risk another form of death.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL< David, you still have it. The bath day isn't scheduled for 7 more weeks. I'm glad it's cool, there are no flys to attract. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | I remember that smell too. I asked about it, and one of my radiotherapy techs said that it wasn't uncommon for people getting radiation on the face ( my therapy mapping included the left nostril) to "smell" an unpleasant burning odor. Whether or not it was a legitimate odor, I don't know...I do know it was there, every time.
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 61 | I remember the smell from my first radiation and thinking it was my flesh burning. I can't remember it beyond that. I do know I became VERY sensitive to smell during my treatment period. My husband's deoderant, co-worker's bad breath, and the hospital smell when I first entered the center. For the center, I put peppermint oil on my wrist and inhaled as needed (the hospital smell made me vomit more than once).
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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