| | Joined: Mar 2008 Posts: 67 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2008 Posts: 67 | I am feeling stronger every day. Amen! It has now been 9 days since my last IMRT and I am feeling better and better!
I still find it necessary to get "drugged up" in the morning in order to be able to drink a liter of water and to get my 1st Skandi shake down. What was the experience of others in working towards getting off of the narcotics?
Also, I am finding myself looking longingly at some of my family members dinners but I know it it to soon to start experimenting with real food. What do you guys think?
I am feeling better day by day. My PET CT is scheduled for 8/4/08. I feel like that is the next big thing to be praying for- a clean PET CT post treatment.
I am also starting to have feelings like I want to get back to work but know that I can't with the narcotics and eating issues.
Does anyone have a comment on any of my list of issues/concerns. Would love to hear about your experiences.
Have a great day!
Frank
SCC Right Tonsil Dx 2/25/2008 at age 43
T1N2B M0,Stage IVa
8mm primary removed 3/5/08
4cm lymph node removed 2/22/08
2 additional sub cm nodes
Tx at Stanford: 30 x IMRT, 2 x Cisplatin,
Started radiation 3/27/08, Completed 5/7/08
p16+, HPV 16+
2 Year Post-TX PET CT 5/10 - CLEAR
| | | | | Joined: Oct 2007 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 71 | Glad to hear you are feeling stronger. But don't over due it I was also feeling pretty good and then found myself crashing and feeling so tried. Not trying to burst your bubble just pace yourself. It does take time for your body to get back to normal. I have also found that my mind says one thing but my body says something else. I can sit there and thing about everything I need or want to do and then before I know it I wakeup from a nap. Take care !
Tammy 43 yr non smoker- Dx-10/11/07 Stage 4 Tongue Cancer Surg.10/17/07, 1/4 Tongue and 14 Lymph nodes 5 positive, Peg tube/Chemo port,Chemo 3 wks/Radiation 6 wks begins 11/07 end 02/08.Teeth removed prior to radiation. PetScan 05/08 CLEAR 09/09. 2011 diag. w/osteoradionecrosis.100 HBO's
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Frank.
I know you want to recapture your old normal life ASAP but your body has been put through the ringer so to speak. Don't push it while it recovers which may take well over a year or longer. Do try to eat anything you want. You will find some things work and some don't but don't give up trying. It wasn't until 16 months post Tx for me that I finally was happy with my recovery and to some that was a fast recovery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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