#7318 03-22-2006 06:25 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2005 Posts: 126 | We were advised by our GI doctor that there is a condition called Gastroparesis or delayed gastric emptying which is a disorder where the stomach takes too long to empty its contents. The symptoms are heartburn, nausea, vomiting of undigested food, feeling of fullness, weigth loss and lack of appetite amongst others.
My wife who has a peg tube to the stomach has been suffering from nausea and vomiting for about 8 to 9 months now during and post treatments.
This GI doctor ir recommending removing the tune from the stomach and insering a new tube into the small intestine so that food will enter the small intestine directly and solve the problems with the nausea and vomiting since there will be no food in the stomach. The tube inserted into the small intestine is called a jejunostomy tube.
I would really appreciate hearing from other forum members who may have had come accross this or have had a tube inserted into the small intestine and what the results where and the side effects.
Thank you very much to all always for your help and sharing you experiences.
CG to wife; Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005. Dec 2006 tongue surgery, Scar tissue no cancer. Feb 2010 neck node FNA - negative. 2010 ORN right jaw plus fracture 2015 ORN left jaw plus fracture Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube June 2016 Difficulty breathing - Permanent Trachea tube Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020. 15-20 esophagus/larynx dilations
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#7319 03-22-2006 07:47 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 |
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#7320 03-23-2006 03:05 PM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 58 | My husband has a J-tube and is almost never nauseous. He has just started treatment though, so that may change. He is into his second week of radiation and had his first chemo session on Monday. He has a J-tube because he had gastric bypass surgery for weight loss 3 years ago and it was easier on the day of surgery to insert the Jtube than to find the remnant stomach(hiding behind his liver) and insert the Gtube. Your wife may benefit from the Jtube. It does take us 8 hours a day for feeding since the tube is much narrower and must be fed at a slower rate, but if she sleeps through the night it can be done as she sleeps. DH is up and down all night, so we fit in the feedings during the day.
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#7321 03-23-2006 04:25 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2005 Posts: 126 | Gary,
Thank you for your reply about Reglan and the link. We will discuss this with our GI doctor.
CG to wife; Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005. Dec 2006 tongue surgery, Scar tissue no cancer. Feb 2010 neck node FNA - negative. 2010 ORN right jaw plus fracture 2015 ORN left jaw plus fracture Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube June 2016 Difficulty breathing - Permanent Trachea tube Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020. 15-20 esophagus/larynx dilations
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#7322 03-23-2006 04:31 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2005 Posts: 126 | AngAk,
Thank you for sharing your experience with the J-tupe. Until lately I thought that the G-tube and J-tube where the same thing. I know understand the difference. It seems from Gary's reply that the J-tupe may not be necessary.
Does the feeding with the J-tube have to be done with a pump?
CG to wife; Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005. Dec 2006 tongue surgery, Scar tissue no cancer. Feb 2010 neck node FNA - negative. 2010 ORN right jaw plus fracture 2015 ORN left jaw plus fracture Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube June 2016 Difficulty breathing - Permanent Trachea tube Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020. 15-20 esophagus/larynx dilations
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#7323 03-24-2006 09:49 AM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 58 | Yes, Vin, we have a pump that regulates the rate of the feedings. We go 170-180 ml/hr, which takes about 8-9 hours a day for 5-6 cans. It's really not too bad, since it can be done at night while sleeping, or just when they are relaxing in the recliner. It's easy to pack up and take with us when we go to our cabin. I really think he has less nausea because of the J-tube, but we're pretty new at this. The mucous is what is getting him queasy these days. I bought some liquid Tussin and gave him a dose but he swears it made him more nauseaous. I hope your wife finds some relief. Sniffing alcohol swabs helps some people. Kind of like the old smelling salt remedy. We're now done with 2 weeks of radiation and 1 dose of Cisplatin.
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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