| | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hello Minnie and family,
Alongside everyone else, I am wishing positive thoughts and lots of prayers to you.
Love to all of you,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hi Minnie,Amy & family, Gary recently put up a link that is helpful with pathology reports and other information. It is www.thedoctorsdoctor.comI join my faith and prayers with everyone here that there are no new developments or set backs for you.
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Minnie,
For what it is worth, people are getting neck dissections all the time after radiation these days so don't worry about that. I had not only that but a total laryngectony on radiated tissue without problems. You need a good surgeon but that shouldn't be a problem where you are being treated. Here's hoping you don't need more surgery. Good luck tomorrow.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Minnie,
I sure hope you catch a break here soon.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Minnie,
My thoughts are with you today.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Our thoughts are prayers are with you guys today.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Nov 2007 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2007 Posts: 27 | Minnie,
Wishing and praying for good things to come from you visit tomorrow to the doctor. I have a dear friend who has had cancer several times and has had those type of reports and once the doctor had studied them it turned out to be scar tissue etc... I pray for you all to be able to rest tonight. You are such an inspiration to me with your determination to keep on living life to the fullest! What a positive attitude!
Your Virginia friend,
Cindy
SCC of tongue removed 3/07 mod. left neck dissection. Tumor reappeared 6/07. Removed 8/07, right neck dissection, free flap from wrist for tongue graph. Radiation 30 (IMRT), chemo cisplatin 4 rounds finished 11/07.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Sending thoughts and prayers your way, Minnie.
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Minnie,
My mom has similar things happen with scar tissue and tightening of her skin etc. Her face sometimes gets red and feels hot but it goes away and comes back. I know you both have had similar surgeries etc. Remember she had the surgery after she had been radiated and everything healed up over time. Her leg where they took the bone and skin graph took over a year to heal and the scab to clear up. She even went to a special wound doctor because it took so long to heal.
Her doctor has finally stopped the PET scans as there were always questionable areas showing up on them and it was always inconclusive even when she would get the CT it would show areas of concern and her ENT would look at them and he would not be able to determine much. Ususally they just looked at the prior scan to see if anything had changed.
I am sending you huge hugs and prayers. You are in my thoughts.
Love,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Everone,
I can always count on this board to come out in droves when I need some inspiration! I haven't posted much lately because I've been busy and because I just needed a break............but I'm back and need your support again.
My doctors appointment went pretty well, I really love Dr. Koch, he's takes the time to sit and talk to me and never makes me feel like a "patient". And he gives it to me straight, which is how I like it. He feels I have a new cancer on my thyroid, one that is not related to my previous cancers............go figure. God must think I'm one strong person! This would explain my voice being so raspy and weak for the past 10 days or so, we thought I had a lingering cold. He also feels the node he's been watching since Oct. needs to come out. So, I'm having a CT scan with contrast done on Tuesday to get more difinitive sizes, locations, etc. and then he'll make a game plan. Looks like surgery for both areas. I just pray that I heal well after the surgeries, I have so much going on right now. I don't want to walk around looking like frankenstein. My daughters prom is the 25th and I'm pretty sure nothing will be scheduled before that. Last softball game is May 1st, so I won't have to miss to much. My girls school gets out end of May so the timing is good.
Thanks to all of you for writing, it always makes me feel stronger.
Love to all,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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