| Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | A double dare, Why not have it here in New Orleans. We need all the tourist trade we can get and there are all sorts of attractions here - food, historical sites, food, casinos, food, golf, food, antiques, food, music, food, art, food, world class zoo, food,etc.etc. There is great interest in the local medical community in rebuilding the regional care system. We can contribute by having an event focusing on awareness and possibly a screening. This is of great interest to me and I am willing to take on planning such an event. I have also been involved in event planning and fund raising and could help with logistics and planning. When I have a chance, I will check the calenfdar and w. the NO Tourist and Convention info center for possible dates. Malka
Last edited by Malka; 04-08-2008 03:25 AM.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | New Orleans sounds great to me. I've done Vegas LOTS of times and it's fun, but it is very COMMERCIALIZED. NO is definately more personalbe and and much more character and the food is WAY better.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | I've never been to New Orleans but have heard that it's amazing. I hope if this comes about Neil and I can come. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The first one was a family affair.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I'd love to see New Orleans but please not during the summer or hurricane season. And New Orleans has gambling also so we get all the good food, atmosphere, history in addition to gambling. The first one was husbands and wives and Danny Boy brought his kids who were in their late teens or early twenties. We met for breakfast and dinner and were on our own the rest of the time. I think there were only about twenty some of us.
As to benefit, my husband came home a changed man. It was like somone had lifted a burden off his shoulders. I obviously had NO clue how much my having had cancer, not once but twice had affected him. There were no support groups when I did this so we were very much on our own. I don't know how much talking the 'guy' caregivers did, but they just seemed to absorb strength from each other in the realization that they were not alone in their feelings and fears. Brian had brought the Lance Armstrong yellow bracelets for everyone and my husband put one on and hasn't taken off since then. It was like a badge of honor. A couple of weeks ago, he had a procedure at the hospital and when I cut off the hospital bracelet, I accidentally cut off the yellow armstrong bracelet. He was so disappointed, it was like I had cut off his right arm. Fortunately I had another so it is back on his wrist performing whatever magic it does.
It was also great meeting people and as Gary has pointed out, somewhat sad because we lost so many that year. Would be fun if this comes to fruition. It really needs someone who had the time and knows the town where it will be held. I think that is what made it happen last time.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I'll throw St Pete Beach into the equation. Less costly than Clearwater Beach and just as good but more convenient to other destinations like St Petersburg, Tampa, Busch Gardens, Disney World, Ft Desoto Park. The water and weather are still warm well into late October and even though Hurricane season lasts until November 1, October is a very safe month. In fact this area hasn't been hit for many many years.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | I am willing to look into wherever...I can check it all out and throw out some numbers and dates... are you talking maybe this Oct ?? Or a year ..Just out of curiosity ...
I think it is a personal choice on who comes with you .. In my opinion it would be anyone with interest in this ..
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | St. Pete is nice too. I think we would pretty much go anywhere, but if I voted my first choice would be New Orleans. I think we'd just leave the kids - otherwise we wouldn't be as relaxed.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
| | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | I missed out on the reunion in Vegas and I still regret it. Being on the board for almost five years now, I know there are lots of survivors in my neck of the woods, meaning the eastern United States. How about Virginia Beach for a location? It's beautiful in October and the history here is amazing. It's not a bad drive from Florida or from up New York way.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | If October, please the last week. We have almost a month of Jewish holidays and I have a niece getting married. The weather here is also beautiful then.
Michelle, contray to media New Orleans is a great family city. We have one of the best zoos in the country in beautiful Audubon Park, an aquarium, Children's Museum, riverboat rides, World War II Museum, swamp tours. Also, there is much to do here and in the region that is very relaxing and also inexpensive.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
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