| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | HEY GUYS,
I got home a few hours ago. I took valium and managed to make it through with my eyes scrunched shut and counting,c ounting, countingl. My modules were about 240 but I was counting fast. I asked what happened if I had to cough and the nurse just said"don't". Whew, I had to swallow twice and I freaked that it would light up on their screen. Otherwise I stayed so still that when they pulled the table out I could not get up for my back being so stiff!! I must have just tensed up so I would not move.
If I can do it anybody can. I just asked that they let me know how much more time every once in a while. I asked for a copy of the results for my records but will not look at it because I am clueless as to what I might see and then go off the deep end. Just came home, took a small nap and was awakened by my doggie to go outside. Oh-peace again. At least for a few days. Pray for my results with me and thanks for not making fun of my anxiety.
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Debbie- Way to go! One more hurdle over.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Eileen, the give you a rubber ball to hold and tell you if you have to cough, squeeze the ball. LOL Everytime zi get into onr of those machines, My nose itches and it drives me crazy. What a feeling.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Debbie,
Congratulations on making it through the PET today. I am praying that you hear good news soon.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Thanks Malka,
I want to talk with you soon! I think of your wisdom often. I
have learned alot lately. I learned today that my doctors nurse is
off today and my doctor is in surgery-so I will not here til MOnday. I'.ll be up a tree by then!
Thanks for your prayers! I need them!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | So how long were you completely inside the machine? 10 minutes, 20 minutes, longer?
If I have to cough, it is usually not something I can hold back because it is mucous in the lungs that is stopping me from breathing. Most days I'm clear for hours after the initial morning coughing. Actually, now that i think about it, they would have to pull me out for me to clear that.
I can understand the nose itch. Happens to me when I have a CT scan. Fortunately they only take a few minutes.
Take a deep breath Deb. The results aren't going to be any different if you worry about them. Go do something nice for yourself to take your mind off of it. Here's hoping for good news.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Good News!
My doctor was kind enough to call me sat am to tell me the news. I could not believe it. I was sure they would find kidney cancer, lung cancer, liver damage, something!! I am so amazed that I made it through. Thanks to all of you for talking me through this little tiny step to some but a scary step for me. I just knew I would be dieing again all over again.
Eileen, I was in for 25 minutes. There is no way to signal them if you have to stop or have an emergency, at least with mine. I asked them to at least tell me how many more minutes every once i n awhile. They reluctantly said they would and they kept there promise. It helped to hear their voice, I tell you.
You know, if you had to schedule one, then you could schedule in the afternoon when your coughing is not as bad, I bet.
I am so thankful to eveyone for listening to me and I will help anyone who has questions. I remember every minute!!LOL
I'm still alive and kickin'
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Debbie:
Thats great news, glad to hear you are in the clear.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Debbie,
Glad to here you got the all clear...and so nice to hear that your doctor understood the anxiety that goes with the wait and called on a weekend.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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