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Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Paul,

Hang in there. You are on your way and the curve is mostly straight up now. Things will slowly improve. You will start to have a good day and then 2 bad days and slowly your good days will outnumber your bad days until the bad days disappear for good. Taste will improve; your dry mouth will improve; your weakness will improve and your mental outlook will improve. It just takes time but you made it so congrats.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Oct 2007
Posts: 6
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Joined: Oct 2007
Posts: 6
Good job Paul.
I only put formula and water down my tube. Never saw the need to do anything else. I sipped water and some diet soda through my treatment. Anything with sugar caused a weird foaming saliva to form. Milk or any other drink was too think. I wasn't able to take more until a month after my treatment finished.

I'm now three months out and am taking the bulk of my meals orally. My throat still gets sore from eating so I use the tube every other day.



SCC, Stage IV, Base of tongue. Dx 9\07. Surg.10\07. IMRTx35 and 2 Cycles of Cisplatin concurrent 11/07. Finished 01/08.
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