| | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Jim,
You're gonna think I'm nuts but try a different brand of water. I found that I could only drink certain brands of bottled water and couldn't drink tap water all. It had to be ice cold. I think it is the mineral content. Unfortunately I don't remember which brand worked. Great Bear comes to mind. Experiment. What does the hospital use and can you drink that?
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I buy spring water and it works good, but my lips and tongue are raw. This is what makes it burn. I am healing very fast tho. A week ago I had a rash and blisters on my face down to my chin. Right now most of it has cleared. Thanks for the advice tho. I'm thinking of you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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