#7143 03-30-2006 02:08 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | It's looking like I won't be able to attend. But I would like to sponsor one of the OCF members who are walking. I guess I could just make an extra donation here in lieu of that but it wouldn't be nearly as much fun. If one of you sends me a message with your address to mail a check to, I'll try to get one in the mail soon! Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#7144 03-30-2006 04:34 PM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | Nelie,
I know Jerry is walking. Here is what he posted earlier:
That's nice of you to offer to sponsor me. I am collecting money from relatives and friends and will be bringing it to the walk.
If you would like to send a check, made out to the Oral Cancer Foundation, that would be great.
Dr. Jerold B. Wilck
KWH Dental Assoc. P.C.
680 Middletown Blvd.
Suite 201
Langhorne, PA 19047-1817
Thank you for reminding me...I have been planning to donate as well and hadn't gotten a check in the mail!!
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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#7145 04-02-2006 06:55 AM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | I'm happy to report that my wife and I will be participating in the march on April 15th and are looking forward to meeting however many OCF members show up. See you then. - Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#7146 04-02-2006 08:29 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Sheldon,
Happy to hear that you and your wife will be there. Looking forward to meeting both of you. My wife, daughter, son-in-law and granddaughter will be there too.
Maybe you can bring me some Killington snow if there's any left. First year I've missed going there in the last few years.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7147 04-04-2006 02:06 PM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | Dear Jerry,
God bless your soul! I'm sending you a check too.
I'm out here on Long Island, which is very close to NYC, but I'm dealing with my own illness right now and probably won't be able to attend the walk (because I can't walk too well in general myself right now- full left sided neuropathy). In any case, please expect my check and I will do my best to spread the word among my husband's family in honor of our Aunt Ro who just had her third reconstructive surgery and is hanging in there.
God bless you and give you energy!
Lisa from Long Island
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
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#7148 04-04-2006 03:33 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Lisa,
Sorry to hear that you are not feeling well. Hope things improve real soon.
I really appreciate your good wishes and the check(s), which as you know, will go to good use with the OCF.
I hope that your husband's aunt gets through her current surgery. Seems so unfair that someone should have to go through 3 reconstructions.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7149 04-07-2006 06:56 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Walkers, Sorry, but Charlie and I are NOT going to make it this year either. It would have been nice to meet you or see you again. Jerry, Just dropped a check in the mail to you today for the walk. My company, CA, will match the donation 100%. Brian will receive paperwork from them after the walk. And to the rest of the forum members, Please think about sponsoring a walker. The OCF has no corporate sponsors and is being paid for by the meager donations and Brian and Ingrids personal finances. That's asking a lot of them without our support so every little penny counts. Take care, Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#7150 04-10-2006 01:43 PM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Jerry and Sheldon and anyone else from OCF who is planning to walk in New York on Saturday,
We have to get together and meet. Jerry and I know each other. I have his cell phone number and he has mine. If you want to meet, e-mail me and I will send you my cell number and we can say hello on Saturday and maybe take a picture to post here on the boards.
Keep sending Jerry those checks! I can't wait to see who raises the most money this year -- I think Jerry is going to be stiff competition for me.
Thanks, Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#7151 04-15-2006 12:48 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Today's the day.
Marilyn & I will be heading over to NYC in about an hour and a half. It's a little cloudy right now but promises to be a beautiful day.
I'm looking forward to seeing Barb again and meeting Sheldon and Glenn.
I'll fill everyone in on the details tonight or tomorrow.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7152 04-15-2006 01:24 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank you walkers and supporters of walkers! You are all totally awesome! Let us know how it went....thanks again....Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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