#7133 03-23-2006 06:12 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | By the way minniea don't be so hard on yourself. These things take a lot of work and you deserve credit for showing the heart to even attempt to take the task on. We learned alot from your efforts and not all of it was because something was not right. Clearly, these things take a team of people to pull off, and for a single family to take the task on we learned just isn't practical.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#7134 03-24-2006 02:49 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Minnie, you did an awesome job with last year's walk! I was proud to be part of it....Thank You! I cannot walk in this year's due to prior committment but I am sponsoring Jerry. Thanks again Minnie, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#7135 03-24-2006 08:45 AM | Joined: Mar 2004 Posts: 117 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Mar 2004 Posts: 117 | Hi, everyone!
I am back to ask who besides Jerry and I are going to walk? I know that the route is about four miles long, that it starts at the Harlem Medical Center, passes through several neighborhoods (I plan stops for pizza, ice cream, etc.), skims Central Park, and takes you back to the Medical Center. My family and I will be doing a slow four mile walk through Harlem and I am looking forward to seeing a part of New York I have never seen before.
If anyone wants information on how to raise lots of money, e-mail me and I'll tell you what my family and I did last year.
Barb
SCC tongue, stage I (T1N0M0), partial glossectomy and modified neck dissection 7/1/03
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#7136 03-24-2006 09:34 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Barb,
Thanks for the help in getting my solicitation letters ready. I mailed the bulk of them on Monday and started getting checks yesterday.
Looking forward to meeting your family and also the pizza and ice cream stops.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7137 03-24-2006 06:24 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Barb, can you send me all the information about the walk? I am talking with my older girls about all of us coming. How about motels, know of any good ones there?
Brian and Carol, thanks for the kind words about the walk. I still have the poster that everyone signed, it means alot to me. Someday I would like to try the event again. Carol, maybe we can do one together, we're not that far away.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#7138 03-25-2006 01:15 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Minnie, In case Barb takes a while to get back to you, the link above in Barb's first posting gives you some of the info about the event. More info is also available at http://www.oral-cancer.org/ I don't know anything about motels/hotels in the area, but perhaps Barb will. Although I was not involved with the OCF in 2004, I heard wonderful things about the walk you organized from members that attended. It would be great if you and your family can make it and a great opportunity for us to all meet. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7139 03-25-2006 01:33 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Eileen, I checked the NYC subway map at http://www.mta.nyc.ny.us/nyct/service/threelin.htm, and this appears to be the best bet. The Seventh Ave. Express goes from Penn Station and stops at 135th Street and Lenox Ave. Not sure exactly how many avenues over Lenox is from 5th Ave. There are also 3 other trains that stop at 135th Street. Not sure if any others are closer. I will try another email to someone involved in running the event. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7140 03-28-2006 07:48 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Thanks Jerry. From what Brian said about there being a major medical center there, I am guessing it is the Harlem Medical Center. If that is the case, I found these instructions on how to get there. Still doesn't tell us how far Lenox is from 5th. Brian, correct this please if I guessed wrong. http://www.ci.nyc.ny.us/html/hhc/html/facilities/harlem-directions.shtml My previous post should have read 'my walking legs are NOT working' so I doubt I will make it. If I don't, I will sponsor someone, which my company will match. Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#7141 03-28-2006 08:27 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Eileen,
It is one block over and both locations, the Subway stop and the start of the walk, are at the Hospital. It is one of those facilities that takes up a few blocks and should be very safe.
Glenn | | |
#7142 03-30-2006 01:52 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi everyone,
As we get closer to April, I wanted to move this thread to the top again in case anyone missed it.
So far there are 3 OCF members going that I'm aware of. Please let Barb or me know if you plan on attending.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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