#70983 03-04-2008 11:38 AM | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | I am sooo happy today my dr agreed to let me have my tube out im doing a happy dance and let me tell you it's very hard to type and dance at the same time...i'm not a good multi tasker
sorry had to tell someone too happy to keep to myself
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Well congrats Debz. The question is 'can you dance and eat at the same time?' Gotta work on that multi-tasking. Enjoy.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | LMAO Eileen ooo thanks to you and all your recipe ideas i can eat and do everything, not putting my food down for no one...
i have a question my Dr has said they remove my tube while im awake they just pull it out, ok now first let me say i am NOT brave at all mrs wimpo here, so this freaked me out a bit so i wanted to ask anyone who has had a tube how did they do yours and did you have a stitch in the hole? my Dr said they leave it open to heal by itself....will i leake?
thanks for reading debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | debz,
Yes, you are awake...its a quick yank and its out. Bill's sounded like a champagne cork popping. He said he had a brief moment of pain and then it was over before he knew it. The hole looks icky for a few days but heals on its own. Bill was instructed to not eat or drink a lot for 2-3 hours and then he had no restrictions except to keep a gauze pad over the hole for a day or two.
You won't leak if you are careful for just a few hours. Congrats on this milestone.
Deb (without the z)
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Sep 2007 Posts: 16 Member | | Member
Joined: Sep 2007 Posts: 16 | I had mine pulled just yesterday! Wow, it was a weird sensation... literally, he just grabbed it, said "Hold on," and YANK! out it came with this sloppy POP! sound, like opening a bottle of champagne. There was a sharp little pain for a few minutes and then things calmed down. Just have an ordinary gauze and tape bandage over the little slit. He says it'll heal in no time.
Tom Alexander
SCC Stage IV BOT, completed 35 Tx TOMO & 7 Tx chemo Taxol + Carboplatin 12/04/07. No surgery.
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Buzz says to tell you that when his PEG was removed it didn't hurt at all; he hardly felt it - just one little 'tug' and it was over. I, of course, had insisted that he take an Ativan beforehand, just because I was afraid that it would hurt him!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Aww thanks for the replys i have decided to put it on hold for now i have to build myslef up for that one, i had a little melt down last night told my hubby im keeping it in LOL i know its nuts after everything we go through with treatment and all but i really am a wimp.
thanks for letting me know Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Debz
courage!! This is not a big deal at all compared to what you went through. Believe me, if you do not NEED it any longer you will feel a lot better when it is gone! It is over in seconds and yes the idea of just yanking it out is strange. If you are concerned take some pain killers beforehand. (you probably have some left over from the radiation treatments?)
M
Last edited by Markus; 03-05-2008 08:06 AM.
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | The Dr pulled mine out and I had a burning sensation for about 15-30 seconds and it was over with. It was not as bad as I "thought" it would be. It was such a relief to have it out and the freedom of not having to mess with it anymore. It closed up on its own and was healed in about 10 days. I kept a bandage over it for that time.
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Aww thanks so much your all so sweet...i have to be honest when my hubby finds out i didnt call he wont be a happy bunny...LOL i think im more worried because mine is so sore now its really red and hurts to clean it so i wound myself up thinking thats really gonna hurt when they pull that out.
Markus i do have tons of meds left from my treatment i think i have about 6 box's of patches that i keep looking at i wonder if i would be able to donate them to someone who doesnt have ins, i also have some of those pills they gave me before chemo i remember them saying not many people have coverage for them so i know there has to be someone who could use them...anyone know how i would find out about this? or does anyone need some.
thanks again Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
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