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Joined: Jun 2007
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do you think i will stop early enough. the stress is un bearable at times.i know there is no easy way to do it.im afraid everyone will look down on me if i fail. god iwish i had never started. the 14th of jan they saw a nodual apperance to my vocal cord
so they moved up my pet scan.waiying on results tues
you always think one more wont hurt
i hope it is from the radition


Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
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My mom used to say she was going to "shake some sense in me" and perhaps my mom needs to come down from heaven and do it to you. Don't worry about what others think because you can't control that BUT you can stop smoking by JUST STOPPING. Say to yourself, self, I will never smoke again as long as I live PERIOD and DO IT. Now you will have "withdrawal systems" but be firm in your conviction and you will succeed and you will be proud of yourself for defeating this addiction. I guarantee it.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Quitting is a tough thing to do, but you can do it. As easy as it seems to say "just one more won't hurt" try applying that same approach to saying "just one more hour" each time you get the urge. I coupled that with a bottle of ice water and a review of what smoking had done to my health. After two weeks, the worse of the withdrawal was over. As David says, nearly one year later, I'm proud of what I've accomplished by quitting. You can do it, I know you can.


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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Its probably just preasure from healing. I get it too and thats what they say. Its part of the healing process!!! LOL

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Thank you, Angie!! Wasn't sure if it is unusual, as I don't hear a lot of people mention it. I feel much better now!


Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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i hope i can stop . i think today might have done it . now i have to go for a bio thursday on my vocal cord nodular apperance
ent didnt like it that it lite up in the pet . hope it is just from radition . still have my ear ache to


Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
Joined: Oct 2006
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My symptoms started in '05 with referred pain to the ear. At that point in time they couldn't figure it out and dismissed it as "Swimmers ear", but it persisted, later that fall having accompanying "Spasms" in my mouth, which they thought could be TMJ but later figured out it was the tumor digging into muscles under my tongue. Once officially diagnosed and a game plan put together I was told of the referred ear pain thing!! Anyway, I still have ear aches from time to time and I still have some spasms. Most of them any more revlove around cold weather, possibly the lymphatic fluids backing up when it's colder or more humid outside (Sounds weird but I have had some interesting conversations regarding that thought process with the doctors). My ears are much more tender now, following treatment, and also, when I seem more tired or stressed the ear aches seem more intense or frequent. I am feeling great though and I just passed my yearly PET/CT and all doctors think I'm doing remarkable, so I just deal with it. Like my RO told me, "As long as the pain isn't constant or consistent it probably isn't a concern. Just stay in touch with it and if anything changes dramatically inform us (Doctors) immediately."
Lolita, I agree with David!! I won't lecture because life is too short and who am I to Judge, but why go through all of the torture of the disease and the treatment to cure yourself only to add insult to injury and continue one of the root cause habits??? The cravings never stop but the heart and head know better and should be stronger!! Throw them away or get help!! You can do it.

Best of Luck,
Steve


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

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Steve---thanks for your input, the pain was crazy yesterday, but I haven't had any today yet. I do have sinus problems that coincide with bad weather/low barometric pressure.Yesterday we had a decent storm, so maybe I will have ear problems as well as sinus during cold or bad weather. I am going to the ENT on Tuesday, since I won't see my oncologist for another six weeks.
I need to worry less.


Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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I am 8 mos from my last radiation and chemo treatments. About 3 months ago my throat started to hurt and got worse as time went by. My ear also started to hurt every time I swallowed I had a pet scan, a biopsy of my throat and yesterday an MRI. All came back negative, but my throat still hurts like crazy. I even had my dentist make a plate which would prevent me from grinding my teeth. I think I'm going crazy, but I know the pain is real and my throat gets filled with the sticky mucous that I got when I was getting radiation treatments. Does ANYBODY have any ideas? I'm really getting desperate. Thanks in advance

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Okay that sounds just like what I am experiencing. Everything looks 'beautiful' as they put it,when they scope me, but my ear hurts and my throat hurts, I am getting bloody noses, and some days I am a little mucous-y in my throat. The doctors and dentist have suggested that I grind my teeth as well, but I'm not ready to shell out 600.00 for plate. I am feeling as desparate as you are right now. I am going to the ENT tomorrow. Will let you know!


Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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