| | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim, Haven't been on for a few days to catch up on all the messages, was out of town. Sorry to hear you are not feeling well. I hope that you can arrange someone to take you to your treatments. Even my Dad, who is the most stubborn man in the world has been having my Mom take him for weeks now. I think he only has a little over a week of them left... so hopefully the time will go quickly for you too. Take it easy, drink lots of water and stay hydrated, ok? (They are talking about putting Dad in the hospital next week if he doesn't.) Happy Friday... and 2 days off from treatments! 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LarrysDaughter ,, I understand the hardheaded part in all of this, but I bet your dad is like me and never had to depend on anyone or anything to help him. I always hated to admit it when I need help and somehow figure a way to do whatever LOL Right now I do need help , but it has to be help that doesn't have a lot of self pity and feelings for others. It seems with some people you are always on the defensive about your cancer. This is 200% wrong and I hope I find someone with the power of thought. Each day it takes more time to get to feel half normal. I hope your dad is doing his best now and giving you and your mom a break. Have a great day,
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Hi Jim, Hope you are feeling well today. At least no driving to treatments will be good. I sure do hope you find just the right person you are looking for! Keep us posted. I am actually getting ready to drive up and see my parents today. They weren't able to be with me last week for that "big birthday" I had, so we will celebrate today. Mom warned me that he looks bad, and is very depressed. Doesn't even want the dog to jump on his lap anymore. Very sad. 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I hope you have a safe trip and aren't too depressed about how your dad looks. I seem to look like a fish that has been out of water for 2 weeks. LOL Give your dad my regards ant tell him that between the 2 of us,, we'll beat the OC as team. I feel really just worn out the last few days. It's probbaly the after affects from Rads & Chemo and the Surgeons hand probing every crevice in my mouth. Have a good weekend and enjoy your parents.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Thanks, Jim. He did look awful. Sad to say. He is so depressed, hardly spoke. He has lost his hair along the bottom half of the back of his head now. He just wants the treatments to be over. Mom asked me to check into what to expect when the treatments are done, so now I need to post over on that topic. Hope you take the time to rest this weekend and let your body have some down time. No floor scrubbing, ok?  {{HUGS}}
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | When I go for rads and blood work this morning, it will be the right time to yell "HELP".. I have trouble swallowing anything since yesterday and will accept what ever the Dr says. Now I do think is the right time for the patches.I still have this week of rads &chemo and then the 29th I get the implants. LOL what a BDay gift, but it might be the best one I have ever received. Hard to believe my body has survived 72 yrs of the beating I've given it .But the Lord looked out for me most of the time. Have a great day all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | He's still looking out for you only I hear he wants you to get a driver because he's also looking out for everyone else. That's what I heard !
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL David, I knew I could could on you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I should add that today the Dr put me on Fentanyl patches. I hope the heck they kick in soo. I put the 1st one on at 3PM. I guess it takes about 12 hrs for the 1st to do it's job and have to take percs until then.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2007 Posts: 17 Member | | Member
Joined: Dec 2007 Posts: 17 | Jim, I hope you feel better soon and start letting someone drive you to treatments. I wonder why men are so stubborn.......
my friend started treatment same time as you and is now beginning to feel rough, she cant swallow anything solid, just liquids, today she had her 15th rad. Take care.
Scotslass,friend of June, diagnosed in Oct.2007 and beginning treatment this month chemo and radiation.Cancer in the neck with unknown primary...wrapped around carotid artery.
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