| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Here here you 2 , There is no answer for the cause of this garbage we call OC,, maybe someday somewhere it wll be figured out but as for now, no pone can give uas a reason. Now you youngins behave or I'll get the paddle LOL David,, I called the American Cancer Society today, Se gave me a local number, if fact no far at all from my house. Tha aldy talked to me and then said she will send me a check.. Thanks buddy for cluing me in to a way to get a little financial help.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Excuse my typos. Those I do very well. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | David, If all you got from that post was that I "have it out for you" I have to question whether you even read it carefully.
I was trying to tell you how that sort of "why did this bad thing happen to you?" made me, personally, feel, when you did it to me--as well as how I see other people kind of reacting. I said, and I will say it again in hopes it might get through a second time, that I respect both your curiousity and your good intentions.
I also thought you might be willing to see that you can still make people feel bad despite good intentions and that you wouldn't want to do that and so would want feedback if you did. Perhaps I was wrong in that assessment.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Just a thought - but personally, I do like to be able to consider all the possibilities of why something happened. Knowing why helps me to adjust my present or future behavior or to try to do something about it. Knowledge brings some measure of control over a situation and can lead to positive action. More important than why bad things happen to good people is - where do we go from here?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | If people could actually know why they got cancer, or why they got a recurrene, or why they were unlucky enough to get esophgeal strictures, I think it would be useful knowledge--but, again, in any individual CASE, the best a doctor can do is talk about factors that MAY have caused it. With drinking and smoking and HPV there is some good evidence about the causal relationship existing across patients but for any one patient it is still at best a probability. Believe me, I have a LOT of curiousity about the causes of oral cancer, recurrences, and swallowing problems. And what I do to satisfay that curiousity is read about research. Not imply to people coming her for support that they should be able to explain why this happened to them. But I'm repeating myself and I have a rule about dialogue on the internet when I feel like I'm just not being heard. The rule is--repeat yourself three times and then let it go. And I think I'm there. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | No comment. LOL I like people that say what's on their mind tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I personally feel much more comfortable answering posts when i have all the facts,and as much information as i can get,therefore if i was considering giving help or advice,i think i would ask the person involved what i thought were pertinent questions on how much detail about their diagnosis they were in posession of.
David is just one of a few seasoned posters who don't indulge in flowery platitudes,and although that may hard to swallow at first,i for one found it far less hurtful or offensive than some very blunt judgemental remarks made about Robins lifestyle choices by less sensative posters.
David was sorely missed during his abscence from the boards a few months ago and i for one hope he keeps on being such a helpful and proactive member of this forum.
Last edited by Cookey; 01-31-2008 09:14 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | I have never found a 'why' question offensive.
Sometimes, whilst in the muddle that is shock/horror/fear, if I've been asked a 'why' question, that in itself has been a support because it makes me take a step back and take breath--and realise that it would never have done any good to rant at the world anyway--you get a grip on questions which can, might, or never will be answered.
And those of us with shameful habits/lifestyle know full well anyway what has caused/contributed to our disease.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL Brenda,, no wonder you are my hero. You tell it like it is too. As for me, I have had all the shameful life styles that they say can cause it. Hell why lie, one of the ones that know me best might read what I type here.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I plan on being a 25 year survivor but I hope 3 years from now there's no new people to post to, just us old fogies.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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