| | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Aunty Pebbles, try this and see what happens. When my mouth is that dry or I want curtail my water intake after dinner I pop a piece of Biotene gum and saliva production goes into overdrive. I use the gum religously weather at work or home. I don't go anywhere without it. 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Hi all
i have heard of that gum although havent found anyone who stocks it yet? where did you get it? i did get the mouth spray thats ok ish it wets my mouth a bit, i am getting so much better now i only wake up around 3-4 times a night instead of every two hours so it does get better.
Anne-marie My Dr gave me mine to try i think you can get them over the counter....i would ask your Dr for a sample or perscription? although i have to say they made the roof of my mouth really sore, too sore to use them today and all day my mouth has been wet so it looks like i spoke too soon i think its just part of my healing and not the wonder effects of numoisyn.
has your son tried the spray? its great for instant relief especialy if he's like me and gets really dry i take mine out with me, i am going to try to find the gum ...does the gum sting like the mouth wash?
thanks for reading...
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | The doctor (my son's maxillofacial surgeon) called in a prescription yesterday to Walgreen's for the Numoisyn but they didn't have it in stock and referred him to WalMart who are supposed to get it in today so we'll see. The doctor also wanted some feedback on how it works for him.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Kevin and Auntypebbles about the Numoisyn - my son got the liquid form and didn't go for the taste at all. He said it had the color, consistency and what he thinks might be the taste of a spittoon!  And to quote him: "Yuck". So - I think we might try to get him the tablets. Auntypepples I think you mentioned having the tablets - what did they taste like to you?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Aunty Pebbles,I get my gum from the Kroeger pharmacy here. I have them order 10 boxes at a time and the cost is less that $2 a box. I found this to be the best after market help I have tried and would recommend it. It is sugar free and does not burn the gums. Let me know how you like it.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | HI
Ann-marie yeah i can imagine how the liquid is the tablets dont taste really but they do have a little bit of a slimey feel to them not bad for me it was the sore mouth thing put me off..has your son tried chewing gum? its amazing i cant get biotene gum but i did get some sugar free gum and its great.
thanks bill we dont have Kroeger pharmacy here not that we know of we have cvs and i think Right Aid just bought out all of the Walgreens. i will keep looking for it my hubby said i should go online see if i can find it? might try that, i paid $1 for one pack of sugar free...$2 a box sounds great
thanks again
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | WalMart has the the Biotene Gum and a liguid that you swish, altho hard to do because of it's thickness, but it works very well. It's Biotene too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | OOO walmart i didn t look there thank you jim, i see your in treatment i hope its going well...sending prayers
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
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