| | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Brenda
Will be thinking of you tomorrow lady..
I hope your appointment is in the morning so your stress levels don't go off the scale..
Prayers and candles
Sunshine..love an hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Brenda,
Hope you have an easy time manana. Praying for you.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Brenda,
Keeping you in my thoughts and prayers.
Margaret
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I'm with you, too, Brenda. Sending lots of hugs and prayers.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I'm always by your side Brenda and will remain there,, just look for the tiger in the sky or on the ceiling.. LOL what a long nite, have not slept a wink and it's 6:40 AM. maybe the chemo
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Lots of positive vibes on the way from Georgia.
Hang in there Brenda.. don`t play the nice girl with the Doc`s it`s OK tell them how much you hurt.
Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Am now utterly exhausted and full of mixed emotions.
Was 2 hour at hospital before I even got my bloods and zometa done! By that time, they thought the consultant might even gone home!
he was actually still there and after having to access the computer for biopsy results--2 weeks on, no letter and 'flagging' from the plastics dept!
Yup, the cancer is back (it never actually went away!)--almost identical report as first one--'undifferentiated cancer etc etc.
Was examined--lump total now 10--but none in my arms which he said was 'good'---duh??
Then decided it was time to try some more/different chemo--Taxotere, 4 cycles, 1 treatment every 3 weeks.
Will make hair fall out/lots of pain and nausea apparently.
Gonna look it all up later. Didn't ask 'chances with/without/time-lines', just focussed on the 3 important facts for me right now:
1) I can go away to Cyprus, Feb 10th to 20th
2) I should talk to MacMillan nurse on Friday about pain control
3) The gross lump on neck SHOUDN'T develop into fungating--in spite of it's feel and colour, as it's 'solid'!
So, still in pain, still dying from cancer, but might hang on a bit longer!
Left hospital with a brochure/application form for wigs and am gonna organise a competition weekend I think for all my friends 'Design a wig for Brenda'! Actually looking forward to having a new style and maybe colour!--Mousey brown/untamed was never a good look on me!!
Was thinking of you all during the day---so many thanks!
Love Bren x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Been thinking about you so-o-o-o-o-o much, Brenda! It's good that you can go away to Cyprus and maybe you can take care of the pain control before then. Make sure you really impress the nurse about the pain control. A new hair style sounds exciting! If you go here: http://www.stellure.com/ you can see all different kinds. If you do a search for "hair style programs" there are some you can put on your computer. Let us know what's happening.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Bren,
Maybe you'll discover a cure for you in Cyprus...I hope so. Re the hair...GO BLOND.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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