| | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Well, the back of neck lump has been excised, stitches out, seems to have healed well and is no onger 'pulling' on all the tissues/nerves etc. around it.
But the original one on the left, which started growing late November, is now the size of a small plum--and beginning to look the same colour!
Some net research tells me it could be 'fungating tumour' which hsn't yet stabroken through the skin to start 'fungating'.
I think both Liz's Robin and Joan's Wally had this condition at the end.
Does anyone know if this is likely to be the case and if so, can anything stop it/slow it to getting to the 'fungating' stage?
I have about 6 others growing, at varying stages and various places but this one is SO visible and just seems to fit the descriptions.
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Bren,
You are so brave...I have no suggestions, just (((((HUGS))))).
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Brenda - I've been trying to read up on these fungating tumours but I just get more confused. Have you gotten any word form your doctor on this - like what it seems to be or if there is something to be done about it? I wish I could get all those lumps out for you and take away all the anxious moments. I'll be thinking about you and sending you big hugs, too. Please stay close and let us know what's happening with you.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Bren: just wanted to send a bunch of love across the pond to you.....here is is......catch!
Thinking of you every day...
Lois
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Thanks all--it's horrid waking in the night, swallowing more pain meds to keep the guy with the spear in my side quiet, and dull the throbbing in the lumps.
I see my consultant on Wednesday, he's been 'monitoring' the lumps from when there were only 2, so hopefully the biopsy results will be back by then.
He had mentioned the possibility of some radiation to shrink them, but that was the beginning of the month, before the 'growth spurt' and discoloration started.
I also need him to up the pain meds--I seem to need at least 2 Breakthrough doses every day,, especially at night.
In the meantime, those hugs and good wishes will keep me going folks!
Love Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Brenda,
I wish I could give you the "Frozen Brocolli Cure"
When my boys were little, I could judge the severity of an injury or hurt by wrapping a pack of frozen brocolli in a dish towel, putting it on the injured spot and having them count to 10. This worked better than a mother's kiss because it was so silly.
I woiuld send you a pacdk of frozen brocolli but it would probably be defrosted by time it reached you so instead I send my heartfelt prayers.
Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Brenda,
I wish you were closer. I would go with you and be another angry voice. You need to make a scene until you get what you want.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Brenda, nothing makes me sadder than you having to go thru more pain amd worries brought on by our friendly friend. I'm sedning the a box of hugs and all of my best wishes and prayers. Can be used as often as needed. Unlimited supply.. Your buddy Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi there sweetheart.Yes Robins tumour was fungating.The discoloration usually means the blood supply to the area where the lump is has been compromised,and the surrounding tissue necroses,and breaks down leaving a fistula underneath. Bren for god sakes when they ask you at the hospital what your pain levels are on a one to ten scale,tell them they are a twenty!!!and your anxiety is off the chart. I remember once you telling me off for trawling the internet trying to diagnose myself,so take your own advice and knock it on the head.  use my number if you need too all my love liz
Last edited by Cookey; 01-28-2008 04:14 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Brenda I know from one of your posts you have read a lot on the Cancerbackup site, Have you used the free phone number to talk to a person? The line is manned by cancer nurses and they know their stuff.. Might be better than diagnosing in cyberspace Sunshine.. love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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