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Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
There are many variations on the "magic mouthwash, "swish & spit" formula. Mine was Benadryl, morphine and lidocaine. All of the concoctions have to be compounded by a pharmacist. Typically it shouldn't be swallowed as it can numb the gag reflex and make it possible to aspirate it into the lungs (very bad - can cause pneumonia). The magic mouthwash is typically used prior to attempting to eat or drink orally.

Most of us had Duragesic patches (as ChristineB mentioned) for long term pain relief (ie anytime pain meds are required for more than a month or so) with morphine for short term (or breakthrough pain). You didn't mention anything about that (and that is the singlemost important and efficacious pain control method). Morphine is fast acting - in liquid form, about 4 minutes (IV instantaneous). Other oral painkillers can take an hour or more to reach full effect.

Oxycontin is sometimes used alternatively for high pain levels and there is also a time release morphine patch available now.

Vicodin and similar synthetic narcotics are "medium strength" compared to Duragesic (AKA Fentanyl).

All pain meds can cause constipation issues so that must be carefully managed.

Her level of pain should be communicated to her doctors using a scale of 1-10 with 8-10 being the worst and unacceptable. The goal of proper pain management is to keep the pain threshold below 3.

See: http://www.oralcancerfoundation.org/treatment/pdf/pain.pdf


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: Sep 2007
Posts: 98
Senior Member (75+ posts)
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Senior Member (75+ posts)

Joined: Sep 2007
Posts: 98
I second Gary's comment on pain meds causing constipation. I was taking a stool softner (from Walmart) crushed up and in my peg tube daily. I was also mixing powder fiber stuff (over the counter) daily in my Carnation VHC drink.

Also, talk to your doctor when you are ready to come off the pain meds. I made the mistake of quitting cold turkey and got really sick with cold sweats and shaking.

Tom


Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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