#66656 01-01-2008 05:19 PM | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | i really dont know if im in the right place or not im 4 mos out of chemo and rad i had vocal cord cancer does any one else have throat spasma or some time s hard time swallowing couurse my first thought it is back drs say everything looks goodi had stage 1t1an0mo i go back to dr ent jan 13th have tried every thing to stop smoking
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Hi Lolita - You are in the right place. My son has throat spasms every once in a while, but they don't seem to bother him too much. It's been about a year since the end of his Radiation treatment for tongue cancer and he did not have chemo. I'm sure there will be others responding who have had more direct experience, but this is also something you should make sure and mention to your doctor. About the smoking, I have another son who is trying to quit smoking and he told me just yesterday that since he got interested in one of those electronic games that his son got for Christmas, it has decreased his smoking quite a bit! Maybe that would be something to try?
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Lolita,
I'm not trying to minimize the addictive power of nicotine but you must start by saying that "I WILL NEVER SMOKE ANOTHER CIGARETTE AS LONG AS I LIVE" and mean it. I was a teen smoker as was just about everybody I knew. I tried many times in college to quit and always found a reason to start up again until someone told "quitting means you will never smoke another cigarette as long as you live." I had never thought of it that way and it was tough but it was what worked for me 40 years ago.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Lolita,
I get spasms through out my neck. I continue to go to massage therapy for my "wooden neck" which does help temporarily. I bought a little cheap vibrating massager for home and use it when I watch TV, seems to help a little to.
I was 20+ year smoker and at the end, before I quit, I was up to 2pks a day. I had tried many times to quit before and failed. When the Dr looked at me and told me I had cancer, I knew that I had probably brought it on myself. I knew all the dangers but continued anyway. I didn't quit that day, I finished the pack I had while I contemplated my life. Then looked at my son's face and knew that I had to do anything I could to spend as much time with him as I could. It wasn't easy by no means!! I approached it as I'm not smoking today. I had to change some lifestyle trigger habits for a while, but now I can drink a cup of coffee today without thinking about a cigarette. I still miss it from time to time, but it does get easier.
Whatever your motivation, start with not smoking the next cigarette...
Tim
Last edited by Stoj; 01-02-2008 06:44 AM.
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
| | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | i really like to read what everyone else has been through i relly need to stop smoking some how some way every little pain makes me think it is back i go to ent the 13 of jan every thing has been good so far so it is normal to have spasms in your neck and some times hard to swallow i had stage 1 t1a vocal cord cancer chemo 7 weeks once a week and 7 weeks of radition will it make one side of your neck smaller i hope im not asking crazy ?
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | does anyone else that has had radition and chemo for vocal cord cancer have ear aches im scared to death bec this is how mine started im 4m0 out of rad and chem hopefully im scared for nothing
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jun 2007 Posts: 214 | Hi, Lolita I am 6 months out from chemo and rad for tonsil cancer, I have been having earaches for a couple months. I am assuming it is from scar tissue. My acupuncturist told me that the radiated tissues will try to shrink up a bit.(So maybe it would make one side of your neck look smaller?) Hang in there 'til Jan.13, I'm sure all will be fine. Easier said than done, though. Teresa
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008. Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer. | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | DOes anyone else imagine lumps thhat proably arent even ther .im almost 5mos out of chemo and rad.all the reports are good so far.Igo back the14 th of jan/.mine was staget1a vocal cord cancer,.they say they got it all god help me to stop smoking.the lump is on the oppisite side of my neck now have a little throat spasms where you big pulse goes down the side of your neck
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have a lump in my neck where the Dr did a dissecetion on Aug 3rd.. It is thick and I can't even feel a pulse where as before I had a good pulse there. The right side is just fine. I just think it's part of the healing process and will gradually return to normal.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jun 2007 Posts: 64 | jim that makes me feel a little better maybe it was the rad on right side that made it smaller bec i relly have to push to feel it on the right.scared bec i feel the lump or what ever it is on the left.maybe im made that way and never noticed before lol.arent your tonsils pretty close to there to mine are farther back than normal go figire thanks
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I think god made us all different and he sure knew what he was doing except for the lack of brain power he gave me.. LOL I wish you well.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2007 Posts: 138 | I am 6 mos post tx and started having spasms/difficulty swallowing about 1 1/2 months ago. It has even caused me to choke a few times because the food gets hung up in the back of my throat and won't go down or come back up. It makes me scared to try and eat anything. I am re-learning how to eat to begin with because I have been on the peg tube from the beginning. I had a modified barium swallow test done and the speech therapist said everything looked normal. She said that if there was any soft tissue problems that they wouldn't show up though. I went to see my main oncologist the other day. He said I am still cancer free. However he did say that my throat shows signs of radiation changes. I am going to continue seeking help for this because I will be very depressed if I can never eat normally again! Have you had problems with choking too?
Nine years out. New normal with limitations, but surviving and living life to the fullest.
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