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lolita #67209 01-10-2008 10:54 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
I think god made us all different and he sure knew what he was doing except for the lack of brain power he gave me.. LOL I wish you well.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
lolita #67232 01-10-2008 03:42 PM
Joined: Dec 2007
Posts: 138
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Dec 2007
Posts: 138
I am 6 mos post tx and started having spasms/difficulty swallowing about 1 1/2 months ago. It has even caused me to choke a few times because the food gets hung up in the back of my throat and won't go down or come back up. It makes me scared to try and eat anything. I am re-learning how to eat to begin with because I have been on the peg tube from the beginning. I had a modified barium swallow test done and the speech therapist said everything looked normal. She said that if there was any soft tissue problems that they wouldn't show up though. I went to see my main oncologist the other day. He said I am still cancer free. However he did say that my throat shows signs of radiation changes. I am going to continue seeking help for this because I will be very depressed if I can never eat normally again! Have you had problems with choking too?


Nine years out. New normal with limitations, but surviving and living life to the fullest.
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