#6469 11-03-2005 11:37 AM | Joined: Oct 2005 Posts: 2 Member | OP  Member
Joined: Oct 2005 Posts: 2 | Hello,
I have read on several other threads that most all recommend a CCC Hospital. I see the closest to me are either Lincoln (doesn't seem to have a head and neck specialization), Houston - Anderson. My question is..What about KU Medical Center?? I have read their website and see they have a head and neck program, but I know it's not a recognized CCC. Any thoughts about KU Med? Obviously, from a logistics standpoint that would be my obvious choice, however I wouldn't want to receive less than optimal treatment just because it was easier logistically. Any thoughts on the best option??? | | |
#6470 11-03-2005 01:29 PM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | I received my treatment at KU Med. Their ENT program is top notch. My physician was the chairman of the department, and is a compassionate and caring doctor. I travel twice a year to see him for my follow up appointments. They are in the process of application for the designation, have met all preliminary fund raising requirements, grants, etc. My treatment followed MD Anderson treatment protocols. It is a great facility. Feel free to email or private message me for specific information.
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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#6471 11-03-2005 04:41 PM | Joined: Oct 2005 Posts: 2 Member | | OP Member
Joined: Oct 2005 Posts: 2 | Thank you Lisa. That is good to know. I sent you a message.
KB | | |
#6472 11-09-2005 02:30 AM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2005 Posts: 129 | Hi
Does anyone know of a comprehensive cancer center near Tampa Florida? My friend's mom just got news yesterday that she has lung and liver cancer. Obviously this is quite serious and we would like her to be seen by the best. Any recomendations would be appreciated.
Thanks
Tami
Tami
Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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#6473 11-09-2005 07:30 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2004 Posts: 100 | Tami,
I am not sure how close to Tampa they are but my friend went to The Florida Cancer Specialists and they have several offices on the west coast.Good Luck!
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#6474 11-09-2005 09:22 AM | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | Tami.... I wouldn't let geography dictate where I went for treatment.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#6475 11-09-2005 10:37 AM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2005 Posts: 129 | With that being said Brian, which center should be investigated for this type of cancer? Details are sketchy at this point. My friend's mom is in her denial phase and not being forth coming. So the primary site is unknown. All that we know is it is in the liver and lungs.
Tami
Tami
Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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#6476 11-09-2005 11:58 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | MD Anderson has a facility in Tampa that was highly recommended to me by John N, I believe. (One of our Florida posters.) Hope that helps, Tami.
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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#6477 11-09-2005 03:40 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Gary has posted several times a link to CCC in the USA. You can go to the search engine at the top of the page, you should be able to find it.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#6478 11-09-2005 05:13 PM | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | http://www.oralcancerfoundation.org/resources/index.htm Scan about halfway donw the page until you see a link that says 'best hospitals" This should be a good starting place for you. This is an unbiased rating of the top 50 in the US
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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