#6263 10-08-2005 02:25 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I had to stop by for a minute to say hey to everyone on this historic day. It has been 2 years since the end of my treatment! I know there has been some discussion about when the clock starts ticking and I, personally, was hanging on to October 8. Well, it finally got here and with it a brief sigh of relief.  To celebrate, I took my wife to a Society of Saint Vincent DePaul warehouse and we packed boxes, filled orders and delivered goods to Katirna evacuees. What a cheap date.  Thank you to all of you for holding my hand through much of this and giving me a shoulder to lean on when I needed it most. You are the greatest!  Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#6264 10-08-2005 02:27 PM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2005 Posts: 129 | Congratulations Ed on your anniversary of health. I hope you have many more!
Tami
Tami
Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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#6265 10-08-2005 02:29 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Yeah Ed  What a nice way to celebrate. Best wishes to you. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#6266 10-08-2005 04:03 PM | Joined: Apr 2005 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 68 | Congratulations! It's always nice to hear the positive stories!
Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!
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#6267 10-08-2005 04:52 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hey Ed,
I just celebrated my two year anniversary July 10th, I'm still feeling the positive energy from reaching that mark. Keep on keeping on, the world still needs you.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#6268 10-08-2005 05:47 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ed and Susan, you are a cheap date in dollars but rich in so many other ways. Congratulations! Hugs from the North.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#6269 10-08-2005 06:16 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hey Ed, Congratulations! And thanks for all of your informative advice, etc. You're 5 months ahead of me... Cheers! Tizz (aka Meredith, my stories are up...where are yours? )
End of Radiation - the "Ides of March" 2004 :-)
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#6270 10-09-2005 02:42 AM | Joined: Mar 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 54 | Ed,
Good for you!!! Congratulations on 2 years, and MANY more to come, I am sure. Thanks for posting!!! God bless and best wishes in your future and continued good health!!!
Rick
Rick T
Stage II SCC(T2N0M0). Dx:Jan.05 Surgical removal w/Neck Dissection (nodes clear) Feb 1,2005.
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#6271 10-09-2005 05:09 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Your the Man Ed!!!! Congratulations on passing the two year mark!!! Say hello to that lovely wife of yours.
Best Wishes, Danny Boy & Marcee
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#6272 10-09-2005 09:24 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Hooray Ed!
Far above the golden valley, glorious to view...
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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