#6258 10-06-2005 08:31 AM | Joined: Sep 2005 Posts: 35 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 35 | Dear Brian, Everyone here thinks the world of you and I can see why. If you go through my profile you will find that my life has been one long coaster ride - I have had the very best of life and also seen the worst - all in all I have led a life that I will never regret. My war with cancer created medical history as it has been one of the most unusual cases ever ( well thats what the doctors tell me!) I was never expected to survive on a number of occasions but always bounced back with a stronger desire to become normal. I had cancer of the larynx - diagnosed in April 2000 and it was in stage 4. Removal of the voice box was not an altrenative but the only option. I refused to remove my voice box and made it clear to my doctors that I was prepared to die rather then give up my voice that I had been born with and had become pretty fond of it to loose it - no way!! Today after countless surgeries - some very major and life threatening, others minor - I have emerged a winner. I have my voice, my vocal cords which they said had become so fixed to the tumour that they would never move - are moving and in unison as they were pre cancer. I survived a massive ( enough to kill ) dose of radiation , went through chemo without loosing a strand of hair, beat perotonites ( an ulcer burst in the stomach )where the doctors gave me no chances as I could not breahte nor eat and my weight droppe down from 80 kgs to a mere 37. I have been through a life threatening fungal infection behind my brain at the back of my head - which could have not if fatal, paralysed me neck down and finally ( amid many other such ) I began bleeding fresh blood in January 2004 and the doctors unable to control it called in my entire family for the last time and in fact it was not to be and surprised the doctor and I was declared cancer free. The doctors in India are world class and even though I have the resources I never wanted to go abroad for my treatment and made the right choice. I have temprory problem (temprory as it will be rectified next month) - whereby I have not eaten orally ( a fallout of the overdose of the radiation) for over four and half years and "breathe" through a silicon stoma. The stoma has been left open so that the doctors can make their periodical check ups and not really for breathing purposes. I am scheduled to appear on a US talk show hosted by a famous personality and it will be aired in the first week of November 2005. My life story is also being made into a full feature movie as they find my entire life a very colourful one and the same is also being serialised for the Indian TV on a popular channel. My story is now due to appear in the Readers Digest, India- as one of the best stories of the year ( it was out in the newspapers in sept. 2003 and serialised right upto date ). Even though I have these tubes to contend with - I work fulltime as the VP - sales, Indian subcontinent for one of the best known nd expensive automobile companies in the world and am also now into modelling for some of the biggest intenational and national brands. The best part about living life strong is that I am married to a beautiful woman, have two sons 16 and 14 and a great mother. They were my source of strength through out my battle and without them I really dont think I would have made the impossible possible as there would have been nothing to look forward to. A lot of people do not believe all what I have written here and I do not blame them. They only realise it when they read the doctors reports and my story from the newspapers. Believe me( if you can and do ) Brian, I am not trying to blow my own trumpet - but want you to convey a message to all - that nothing is impossible. All it requires is acceptance of the illness and knwoing the clock cannot be reversed. The only way out is to fight and thats where ones attitude plays a major role. The doctors can treat you for the illness to an extent but largely its you who should be mentally strong to take on the cancer head on. I keep reading about people writing and giving opinions that should be left to doctors as at times they could be very misleading and think Mark does a great job in trying to curb such things. Kudos to both you and him.  [img] http://ananth[/img] I will keep you appraised of the programme which will be aired worldwide and do hope you will see the same. I am not to sure about the excat date of when its going on air - but will know next week and then revert to you. It would be great if members of this site would also take some time off to watch the programme as believe me it will be worth each ones while. Thanking you for your time, if you have been though my entire topic. Warmly, Ananth Shenoy
"FIGHT AND YOU SHALL OVERCOME"
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#6259 10-06-2005 10:07 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Ananth, Thank you for your kind words. I try to keep balance as best I can. Sometimes humor because it helps.
I want you to know that I have no reason to believe your story is not true. It is an amazing story and I enjoy your upbeat attitude.
I feel a little bad that I have not replied to any of your posts until now, my reason is because you have been a prolific poster and your message is usually so upbeat that I have not much to add.
I will say this, I am very happy for your survival, for your happy and healthy family (I have 3 sons myself 18, 14 and 10) and for your positive outlook.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#6260 10-13-2005 03:24 AM | Joined: Sep 2005 Posts: 35 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 35 | Hi Mark, It is great to hear from you and hear all the nice things you have said about me. I found you to be really a great guy when it came to controlling things and reply to members at the right time. I can understand the problem you faced in my case as Yes - I have been a profilc poster and the reason was/is to try and understand why and how did I survive against all odds. Most people ask me why do I worry about such a thing when I am ok. That is fine - but I am keen on understanding what it was tht happened that has kept me alive and not just alive but with all my organs intact - mostly my larynx- which were totally stuck and the doctors were very sure they would never move again.
Do you think anyone in here could give me some answers?
Warm regards to you and your family, Ananth
"FIGHT AND YOU SHALL OVERCOME"
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#6261 10-13-2005 04:15 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ananth, Most of the posters here are not medical experts in regards to this cancer. We are familiar with a lot of the details because we have been through it-but not trained experts. Further, there are mysteries in healing that all the experts won't understand. Why diseases do not affect some people the same as others, is not well understood.
In a sense I undersand why you want to know, but I also think why does it matter? You have survived, now you have the more important question of what are you going to do with your gift?
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#6262 10-17-2005 02:08 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Ananth,
I was quite inspired when reading your story, albeit abreviated. There is no question you have survived and lived life large! Best wishes for you and I would really like to know more about the show your story will appear on.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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