| Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2007 Posts: 138 | I, too, had the pulmonary densities. My RO said that it is very common to get scar tissue of the lungs from being in the field of radiation. My pulmonary doc put me through a PET scan and the radiologist said that the densities do not look like cancer. Although my docs are keeping an eye on them, everyone has concurred that the densities are indeed scar tissue from radiation effects. I still have my peg tube in as a safety net for nutrition, but I can eat by mouth somewhat. However, like you, I don't have much of an appitite to eat. I hope that changes for both of us! Good luck to you!
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | My first 2 post Tx cats showed spots in my lungs which we were told by everyone not to worry about.....yeah right!!! By the time I got my 2nd cat, the spot that appeared the first cat was resolved but I had a new spot. By the 3rd cat all spots were gone and my wife & I finally felt relieved.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | EZ Jim,
No sweets don't bother me at all. Actually, other than hot spicey foods, nothing bothers me in my mouth. My RO just told me during my last scope that if he didn't know what Tx I had had, he would not be able to tell I had any rad so I guess that's good news.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Dec 2007 Posts: 46 "OCF Down Under" Contributing Member (25+ posts) | "OCF Down Under" Contributing Member (25+ posts) Joined: Dec 2007 Posts: 46 | Hi All! You know whats funny (I try to find funny and ironic things each day to keep my spirits up) to me at this point of my cancer? The weight loss ads! AND IF there is ONE thing that we in our VERY Special Club have over these poor suffering women who go to bed hungry wanting to have to body of Kate Moss, it is that WE have the complete and total right to pour full fat everything over everything we eat and then down our throats! hahah...ok...sure, we may still lose too much weight and need a tube, but I am going to do my damndest to keep my throat lubricated with good old fashioned creamy stuff! YAY!..What a silly ironic world isnt it? BUT, man, I sure LOVE seeing those poor womens faces at the supermarket checkout watching me total up my four large tubs of full fat yoghurt, a large Triple cream Brie cheese, Full Fat milk, Full fat custard etc etc (I am at the point where i will buy healthy ONLY if it tastes good UNTIL i am forced to do otherwise heheh!) So, my friends, as much as it sometimes hurts pouring our full fat goodness down our poor burnt throats, think of those silly women who want to be size 0 and ENJOY the moment! In australia, thankfully our dress sizes only go as low as size 8...thank goodness...at this point Im size 14 and Im fine with that! Im down 2 sizes at this point, and dont care if i go up or downb as long as i am alive and taking up space abive ground! Have a great day/night my friends, and may whatever you do today be fun and painless..and if it has to be painful I hope its quick! Love Lyn 
Tongue Cancer SCC Removal of 2/3 of right side tongue, neck disection-34 lymph nodes removed. flap for new tongue made from left wrist in 2007. Now (mid 2011) speech has been back to normal since early 2009, and Im back working as a singer. So far so good! 2016... Still cancer free! Yay.
| | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Nice one Lyn---and the whole weight issue is something that's plagued me, in reverse, all my life! At school the boys used to put newspaper cuttings in my desk for padded bras and write notes saying 'Forget Oxfam, feed Brenda'--I could always eat anything, but the slightest loss of appetite and the weight fell off. I was 7and half stone at the beginning of my pregnancy with twins, 13 and half at the end, back down to 8 and half at my post-natal check 6 weeks later!
My idea of good, fat-making nutrition now is strawberries smothered in full-fat cream AND ice-cream! Or a chopped banana covered in melted chocolate then smothered in full-fat toffee-yoghurt--Yo--vitamins PLUS fat!! Am definitely living to eat!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | It is ironic! There you are in a household where EVERYONE is obsessed about weight... and so are you, just in reverse. I never liked sweets but made up for this with salty things. Nuts, dried fruits (not exactly salty) and kettle cooked salt and vinegar chip....... well these are out at least for now. It is however the season and there is always eggnog.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Good for you, Lyn! And you, too, Brenda - I had the same "weight" problem until I finally entered menopause. I used to be called "skinny minnie" or "stringbean". One day, in my 20's when I went into a clothing store to try on a new dress, the well-meaning (?) clerk who came to check on me, exclaimed "Oh, Honey, you really should wear a padded bra!" Trouble is, I already was!  My ego took a nose-dive that day. So hurray for ice cream! And all the other fattening goodies!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Oh you lucky Aussies. You have dome great candy there. I forgot the brand but someone brought us some chewy squares and I have found real red licorice as well as black here (Walgreen's).
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I never ate fat until I started recovering and I was told to GAIN WEIGHT...DON"T WORRY ABOUT FAT. I ate all the bad things I had rarely dared put in my mouth...pizza, cheeseburgers, ribs, cake, cookies, high calorie TV dinners, etc. Then about 3 months ago I had blood work done and my PCP said "your colesterol is high" and all of a sudden he's saying lay off the fat but my wife and everybody else is saying I'm still to thin. I still haven't figured out what to do to please everyone. It's hard gaing weight when I ride over 100 miles a week but I would rather cut my arm off than stop riding.
Last edited by davidcpa; 01-04-2008 01:28 PM.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: May 2007 Posts: 632 | Whever my mum took me to the doc when I was younger, and always worrying about my health, he always said, 'Better thin and healthy........' Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4 6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine therapy September 07 Now dying to live!
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