#61656 09-22-2007 10:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Debbie, I'm sure I've already asked you this before, but what part of Virginia are you in? I had the jaw surgery 4 years ago and they used bone from my leg. I did fine with it and it still is fine. Sorry to hear you had so much trouble with it If you ever want to talk, email me at [email protected] and I'll send you my cell phone number. It does wonders to talk to others and we're probably close enough that maybe we could get together! Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#61657 09-23-2007 07:02 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Oh Minnie,
That would be great. I will send you a private email or you email me at XXXXXXXXXX with a number and I will call you. You are the busy one these days. I am in Roanoke, about 5 hours from you but nothing says we couldn't meet half way sometime or talk.
Do you still have surgery tuesday? Oh and who was that dr. at uva?
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61658 09-25-2007 12:19 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hey, you guys,
Got the results of the biopsy and thank the lord they were negative. I waited almost 2 weeks and paced the entire time. My prayers to those of you that must go through this agony.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61659 09-25-2007 12:25 PM | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | That's news worthy of a big celebration! Sorry you had a stressful 2 weeks. I hope you are able to relax and relish in the wonderful news!
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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#61660 09-25-2007 12:32 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Thanks, it is just grand!
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61661 09-25-2007 04:06 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Debbie,
Just adding my congratulations. Go out and celebrate.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#61662 09-26-2007 03:20 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Debbie - Great news! Unfortunately I know that feeling of waiting - but the feeling of relief is so wonderful! Enjoy every minute of it - you earned it with the worry...
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#61663 10-08-2007 07:34 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hey
Today I have to go back and maybe have that tooth pulled. The bone is gone and it is loose and hurting. I am going to ask for a bridge but I don't know without a bone what they can do. Do you Jerry or Mike?
I am afraid my jaw will be sunken even more than it is. Will this never stop!
I am scared
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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#61664 10-08-2007 08:01 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Debbie---
I had my Zometa today and have been doing some more research on it and found an article which said it's now being used to treat head and neck cancer.
Also, what had had me worried was the possibility of jaw necrosis with it--as I have that anyway!!!--but apparently, if you have dental work done BEFORE starting the treatment, Zometa doesn't necessarily cause this, and it's pretty rare anyway.
My jaw doesn't appear to have shrunk any more over the last 4 months since I've been having the treatments, and the infusion only lasts 15 mins, flush before and after of course!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#61665 10-08-2007 02:26 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Debbie,
In order to have a bridge, you must have a tooth in front of the space left from the extraction and a tooth behind it. If the bridge is replacing one tooth, it is called a 3 unit bridge.
Not knowing which teeth you have, it would be difficult for us to tell you what your options are. The amount of bone in the area of where the tooth is being extracted, is not really as important as is the amount of bone around the bridge supporting teeth. Bridge abutments must have good bone support for the bridge to succeed.
Hope this helps.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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