#61316 07-23-2007 08:41 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Tony, I think a second opinion is very much worth your while. It doesn't do anything but good. You may well get the same recommendation, or you may not. Either way, you'll get a fresh perspective.
As for the straight nutrional cure...It doesn't exist. Certainly, diet can help you in your battle. That said, there is no evidence that suggests you forego traditional treatment in favor of changing your diet. That's dangerous territory, you've already been through a horrific ordeal, and the Doctors wouldn't recommend additional aggressive treatment if they didn't feel it was warranted.
There are a million and one quick "magic bullets" that will treat or cure cancer. Most are designed to relieve one thing; your pocket of all money that it contains. Stick with what your Doctors say, Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#61317 07-23-2007 11:52 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Tony - a second opinion is certainly a good thing to do and even a third opinion. When my son's cancer team got together, they felt that radiation would be the way to go in his case. They felt that radiation was an added way of insuring that the cancer would not come back and I'm really glad my son decided to go with it. He did have a very rough time of it tho' as many on this site have. But I have read several survivors who just breezed right thru it! A positive attitude certainly helps, too.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#61318 07-23-2007 02:00 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Tony
I as well am in NY as we have discussed in Pm ..But I didnt ask where you are recveing treatment?
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#61319 07-24-2007 06:28 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Dec 2006 Posts: 46 | Dear Sharlee, Anne Marie,Amy,Dragon,Cookey,Margaret,Gary and Brian, Thank you for your replies and advise. I decided that I will go through with it. I definetly don't want to but I believe the alternative would be tragic if it came back.
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
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#61320 07-24-2007 06:32 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Dec 2006 Posts: 46 | Cookey, I would enjoy talking with your friend, If I knew how to go about it. If you could guide me that would be great, thanks.
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
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#61321 07-25-2007 12:58 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | Tony, it's normal to try to avoid something you know is going to be unpleasant. In this case, though the Beast will not give an inch of ground voluntarily. You have to attack, and attack with all the vigor and determination you can muster. That's what kills the Beast, and half measures won't do.
You can make it through, and we're all her to help, just shout out when you need us and we'll be there Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#61322 07-26-2007 06:01 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Dec 2006 Posts: 46 | Thanks everyone. I wanted to add to my earlier post.My electro laryngx is working unbelievabley well. I am no longer needing the tube that comes with it. When your throat is swollen you can't stand to push it against your throat to talk. Well today I tried it and it worked great. Every one can understand me! I talked on the phone for an hour! So I'm going to pospone the surgery to get the implant (provost II) put in. I don't like the idea of getting surgery then being dependent on the doctor to change it every 3-6 months if you're lucky. Several hundred dollars each time.
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
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#61323 07-26-2007 06:05 PM | Joined: Dec 2006 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Dec 2006 Posts: 46 | I start Radiation next week anyhow, I don't like the timing. Too much too soon. My old boss said there might be a job in the future too. That is great news! I can see that there is light at end of the tunnel. Nothing cast in stone, but today is a good day! Thank you God!
46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!
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#61324 07-27-2007 02:17 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Tony, just to let you know I am thinking of you, today is a good day! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#61325 07-30-2007 05:40 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | Gee, Tony
Welcome to OCF. Here you will find a lot to read and some good friends too.
Do you have feeding tube? Since you are going into Radiation you might need it.. It will help you keep up with body needs and liquids.
I get the idea from your post, you have had radiation before? So I am sure you know what is going on. Your are the one that needs to understand everything that is going on with you. Do not be afraid to ask questions, even if they sound dumb to you. No question here is dumb, we all know how things can get out of hand if we do not KNOW!! Or ask questions... Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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