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#61015 06-03-2007 04:32 PM | Joined: May 2006 Posts: 20 Member |  Member
Joined: May 2006 Posts: 20 | I was curious- do any of you take pain meds for the tightness around the jaw and sore tongue. I am still taking Lortab to help with this type of pain and i was wondering how other people were handling it.
Female, 36 yrs. old. Stage 1 tongue cancer; no lymph nodes; surgery & radiation
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#61016 06-03-2007 04:39 PM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | It is so frustrating. All cancers are cruel but this is awful. I don't think I've enjoyed a meal since last November. I was eating in Decemer & still not diagnosed but my toungue hurt so bad I count that too. I'm trying to gain weight & it's hard. I have a 2 year old girl and she hates the looks of the PEG & the whole process that goes along with it. So, I can' eat if she's around or I have to go hide. ugh. My husband does great at trying to distract her but she still says Hold me mommy. Poor lil girl as been put thru the ringer with all of this. Her & I use to do everything together. Then w. the pain & fatigue, I feel like a loser mom cuz i can't do the fun things anymore. WOW-sorry I just vented so long. Maybe I should've gotten online BEFORE I took my Ambien.
We all feel like we're not as far along as we should be. We're in a club that no one wants to belong to but at least we have each other.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#61017 06-04-2007 12:54 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Banker, I am two years out from rad and I still have a stiff jaw and a sore tongue at times (mostly I think from drymouth and rubbing against my teeth which have shifted around since rad). I take Aleve when it gets too bad and that usually works. But I don't know how far out you are from treatment. I was on prescription pain meds, at least at night, for about 4 months after rad. ended. my mouth was MUCH more painful then.
Jordan, I completely understand your frustration with how long it takes to heal but it doesn't sound to me like you are unusually far behind in terms of your recovery. Though you don't have info. about your treatm,ent in your "signature", it sounds like you are maybe 3 motnhs out of rad? I still had a lot of pain and faigue at that point and many people still need a G tube at 3 months. Though perhaps you should request a swallowing test if you feel you can't swallow anything for reasons other than pain.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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