#60586     04-16-2007 01:00 PM      |       Joined:  Apr 2005  Posts: 2,676    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Apr 2005  Posts: 2,676  |    Karen, hope you don't feel that this is presumptuous, but if youall haven't started planning the "after passing" things to be dealt with [obiturary, funeral or memorial service, who will call what family and friends, etc.] now is a good time to start that process. If those details are in place, the family can spend some "regrouping time" together without the added burden of having to deal those immediate pressing details. Wishing you well and saying a prayer for your Dad. This must be so hard for him. Amy in the Ozarks        
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur  Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#60587     04-16-2007 03:31 PM      |       Joined:  Nov 2006  Posts: 2,671    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Nov 2006  Posts: 2,671  |    Karen -   I'm glad that your Mom is getting the care that she needs and the family support that you are all providing for her.  I'm sure it must be a trying time for your Dad as well.   I can well understand your gratitude for the Canadian system of health care.   My children and I were Canadian residents (living in Quebec) for a couple of years and it was amazing, the wonderful health care we received while living there.  My thoughts and prayers are with you and your family.        
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)  
 
 
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#60588     04-16-2007 03:47 PM      |       Joined:  Mar 2003  Posts: 1,384 Likes: 1    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Mar 2003  Posts: 1,384 Likes: 1  |    Karen, Please ask if a different pain option is available for your mother.  Morphine sometimes causes paranoid wacky behavior.        
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#60589     04-16-2007 06:04 PM      |       Joined:  Jan 2007  Posts: 735    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Jan 2007  Posts: 735  |    Karen,
    I dont have words to express my deepest sympathy , I hope that you can find peace in the memories you have of your mom and for your dad I hope I know he can also, knowing that she more then likely dosent mean these things she is saying. It is very possible it is som of the meds like mark said. I wish you , your mom and your dad all the best and (((HUGS ))))) from NY
 
  Shar        
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery 
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#60590     04-21-2007 06:39 PM      |       Joined:  Apr 2007  Posts: 4    Member   |           Member    Joined:  Apr 2007  Posts: 4  |    Amy, we pretty well finalized the after passing issues today.  It was not at all presumptuous of you to bring it up.  We are making decisions as a family - all have input.  We are now taking turns staying at the hospital with Mom, day and night.  We know the end is near; breathing has changed, etc.
  Dragan, Mark, Anne-Marie and Shar - thank you so much for your advice and well wishes.  This forum has been a source of information and inspiration for me and some of my family members.........
  Karen      |      |       |                      
#60591     04-22-2007 08:16 AM      |       Joined:  Apr 2005  Posts: 2,676    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Apr 2005  Posts: 2,676  |    Karen,wishing you all well. Amy in the Ozarks        
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur  Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#60592     04-22-2007 11:07 AM      |       Joined:  Nov 2006  Posts: 2,671    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Nov 2006  Posts: 2,671  |    Karen -  Sending Peace and Love to you and to all your family.        
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)  
 
 
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#60593     04-22-2007 04:05 PM      |       Joined:  Feb 2007  Posts: 168    Gold Member (100+ posts)   |           Gold Member (100+ posts)    Joined:  Feb 2007  Posts: 168  |    My heart is with you and your family. Don't forget to take care of yourself as well.  Lee        
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed.  Good Health and Good Help to you. Lee
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#60594     04-23-2007 01:04 AM      |       Joined:  Feb 2007  Posts: 1,940    "OCF across the pond" Patient Advocate (1000+ posts)   |           "OCF across the pond" Patient Advocate (1000+ posts)    Joined:  Feb 2007  Posts: 1,940  |    .May your journey be made easier by the love of your family
  li in the uk        
Liz in the UK
  Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
  Never take your eye off the ball, it may just smack you in the mouth.
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#60595     04-26-2007 08:17 AM      |       Joined:  Apr 2007  Posts: 4    Member   |           Member    Joined:  Apr 2007  Posts: 4  |    Hi everyone - just a quick note to let you know that we lost Mom on April 24th.  She was surrounded by family during her last few days and she passed away peacefully.
  Thank you for all your well wishes and encouragement.  :-)
  Karen      |      |       |                 
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