#60433 03-08-2007 03:54 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I drank water throughout treatment and for the first couple months afterwards. But, soon after my mouth accepted my carbonated drinks again and it's my drink of choice. I drink caffeine free pepsi 99% of the time but I do try to get in some water. Believe it or not, water drys my mouth out, it's the strangest thing.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#60434 03-09-2007 01:19 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Minnie, I feel like water dries out my mouth a little too (not as badly as tea, though).What works best for me drinks where these is some "slime factor" (that is, some fat), such as coffee with cream, milk, etc. Now that I am swallowing again, I do drink a fair amount of water too.
Right after treatment, when I still had a lot of "mouthslime", I could drink, and really enjoyed, iced white tea with a little fruit jiuce in it. It was one of the first things that would go down without hurting my mouth. But then when the phlegm went away and I got really dry instead, I found I couldn't drink it anymore--ot made my teeth stick to my cheeks I was so dry!
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#60435 03-13-2007 01:34 AM | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 77 | Thanks for all the input.
If I find a super-food-enhancing drink, I'll let everyone know.
Chris
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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#60436 03-13-2007 02:31 PM | Joined: Mar 2007 Posts: 7 Member | | Member
Joined: Mar 2007 Posts: 7 | Chris,
I had IMRT both sides (35 sessions) and chemo weekly. My taste also started to return, albeit in fits and starts, at about 4 months out. More importantly, my salivary function began to kick in around 6 months which made all the difference for me in regard to eating with any enjoyment. Prior to that time, water was about the only thing I found to facilitate eating. Dairy products increased my mucous secretions (and still do)so I don't drink a lot of milk. I'm now 33 months out from treatment and enjoying "most" any foods. Hang in there!
Dx 2/12/2004 T2N2M0 SCC of right tonsil.Tx 4/13/-6/03/2004. Surgery, IMRT/Bilateral w/boost 35x, Carboplatin + Taxol 6x.
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