#60098 01-17-2007 03:51 AM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | I am now 6 months post tx and still have skewed taste buds which I'm sure a lot of folks here know the drill! I read something recently that I thought I would see if anyone else has heard about as a means of recovering the "buds" quicker or in some cases, at all.
I read an article dealing with oral cancer that referenced the taking of 2 to 3 220 mg tablets daily of Zinc Sulfate as a possible remedy. Has anyone tried this or have firsthand experience with it as a possible aid? I searched high and low at local drug and other stores but was unable to find Zinc Sulfate. I found plenty of just plain Zinc but not Sulfate. I found plenty on the web and placed an order for some that way. I will give them a shot but thought I would see if anyone else has heard of this.
Thanks,
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#60099 01-17-2007 06:58 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Don't brush your tongue (if you are) - that doesn't help the tatse buds. It took me all of a year to get substantial taste sensations back. Salt was first and sweets were last and they took even longer. All is normal now at 4 years post Tx.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#60100 01-17-2007 07:36 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | Platinum Member (200+ posts) Joined: Jul 2005 Posts: 207 | Hi William,
I was the opposite of Gary. I got my sweet back first. It took a year to be able to tolerate carbonated beverages. I still drink them in moderation now two years out. I think they will slowly come back.
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#60101 01-17-2007 07:57 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi William, I was told to take Zinc Sulfate 220 mg for healing, dietician didn't state specficately what it was healing, along with 1 multivitamin, like Centrum, Vit C twice a day and vit E once which they no longer recommend. I have stuck to this regimen for the last nine years. I didn't have a Peg so I had to eat whether it tasted like crap or not. I had some taste back after 1st month and most by 6 months. Sweet came last and I never really lost salt. For a while you could put a pile of salt and a pile of suger next to each other and I couldn't tell the difference.
So did the Zinc help. Who knows, but it is worth a try. I order it at Rite Aide Drug store. Will look up brand name tonight. If nothing else, I think it has kept me from getting colds.
Keep experimenting. Taste changes daily. Moist foods are the easiest. As for brushing one's tongue, I found it improved my taste. Got the crap off that accumulated during radiation. I use a very soft toothbrush and give it a couple of light brushes. I don't know what Gary used that caused him so much problem. I thought dentists recommended doing this.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#60102 01-17-2007 11:08 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Dec 2003 Posts: 116 | I have not tried or heard of the zinc but my taste came back slow and are still about 75%. Sweets were first and I still can't tolerate any hard alchol or vinger dressings which burn my tongue and throat 3 years later.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#60103 01-17-2007 11:56 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Try Kraft Balsamic vinegarette. It was the only one I could tolerate and that took a year. Meantime, I used a creamy blue cheese dressing that has low vinegar content. I don't remember the brand. Maybe hubby does.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#60104 01-17-2007 01:05 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | William,
I am 4 months out and can pretty much taste food throughout the entire meal now. That has just recently changed as I could only taste the first chew or so before. My dry mouth has improved slightly which may be why my taste has changed some. I believe they go hand in hand in affecting what we refer to as "taste".
I never lost the taste of sweet but like everything else, not many things taste exactly like they did before. Chocolate is bitter now but that's about the worst taste experience I have. I was never a big sweets person (cause I'm sooo sweet) so that hasn't bothered me at all.
I had 4 beers at my wife's BD party Sunday. Boy, it was great to fire up the BQ grill and down some beers with our friends !! Anyway the alcohol didn't bother me taste wise. It didn't taste the same as I remember but like I do with water I found myself swirling the beer in my mouth everytime I took a drink. That wasn't a pleasant experience with the carbination in the beer. The alcohol did affect my dry mouth unpleasantly so it will be a while before I drink an alcoholic beverage again.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#60105 01-17-2007 03:25 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Brand at Rite Aid for Zinc Sulfate 220 is now Majors, price $6.17 for 100. Take 1 a day. Brand use to be URL.
Blue Cheese Dressing with low vinegar was Hellmans. Damn I wish I had kept notes. You current patients need to keep records of what works for you so you can help someone down the road. Trying to remember this 9 years later is tough.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#60106 01-18-2007 09:25 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Eileen,
That's "Newbys" to you and I'm only 4 months out and I've already forgotten everything I took so you must continue to carry the torch. LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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