#5972 08-28-2005 06:33 AM | Joined: Aug 2005 Posts: 3 Member | | Member
Joined: Aug 2005 Posts: 3 | Girls it has taken me days to try to register here. Finally my computer let me ! Can't wait to talk to ya'll and meet new folks too. Lia | | | 
#5973 08-28-2005 11:04 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | Lia I am so glad you are here. These lovelies know all about the problems and if they can't figure out a way for you to eat and gain some weight nobody can.
Blessings,
Barb
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#5974 08-28-2005 12:17 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Welcome Lia- I have found computers to be alot like 2 yr. olds. They just do what they d*&% well please. Now that you are here-Post away. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#5975 08-30-2005 09:13 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hello Lia and welcome.
Let us know how we can help you, are you a patient or caregiver?
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#5976 09-07-2005 08:38 AM | Joined: Aug 2005 Posts: 3 Member | | Member
Joined: Aug 2005 Posts: 3 | I have just today been able to get on here again ! This site just doesn't want to let me in ! I am a patient . I have esophageal cancer and colon cancer , been thru 3 surgeries and chemo and rads. Right now I have terrible constipation problems plus nothing tastes right and I have no appetite. My weight is getting dangerously low. What do I do ?! Lia | | |
#5977 09-07-2005 09:03 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Lia and Welcome, I am sorry to read of your difficulties. I couldn't eat for a while, and drank Boost and Ensure, even tho I couldn't taste it, actually it tasted like cardboard. I was on morphone and do remember the constipation problems. The oncologist gave me something to relieve it and I cannot remember what it was. Sorry. Know that I am thinking of you and praying for you! Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#5978 09-07-2005 09:50 AM | Joined: Aug 2005 Posts: 3 Member | | Member
Joined: Aug 2005 Posts: 3 | Carol, I am taking Compazine for nausea and one of its side effects is constipation and I think that is the cause of mine. I have a liquid called Lactolose from the dr for constipation but it does no better than Milk of Magnesia. I rarely take a pain med as I think most of my pain is really from the constipation and I sure don't want to add to it ! Lia | | |
#5979 09-07-2005 01:09 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi,
Don't know if this will work for you, but I was given Miralax after my second occurrence which you add 1 scoop to 8 ounces water. It cleaned me out. It needs a prescription. Ask dr what you can have.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#5980 09-07-2005 01:32 PM | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 70 | You don't mention if you hae a PEG feeding tube to assist you in keeping your nutrition and hydration up. If you do not, and you are losing weight it is time to talk to your doctors about this. Pain meds cause constipation, and of course your new diet ( or lack of a proper one) is not helping matters. See if you can get some Senekot, and try drinking Ensure with fibre to help the situation.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#5981 09-07-2005 02:12 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
Have 6 members willing to help out in one day. Hope to have the fifty needed by October 15th.
Hoping to hear from you soon. Any questions plese let me know.
Love Ya All, Danny Boy
Mark, How do I move this posting to my original thread dated 3/7/05?
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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