#59597 12-13-2006 06:37 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | You all win the prize!! Marlo Thomas, daughter of Danny, was "That Girl". Danny Thomas hosted "The Danny Thomas Show" and I believe he was the founder of St. Jude Children's Research Hospital. (JoAnne, senile-come on!) Great television star and a true humanitarian as well.
By the way, thanks for the tip on the Stoppers 4 Dry Mouth, Ann Marie. I'll have to give that a whirl!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#59598 12-14-2006 12:55 PM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Well all anyone has to do is read this post to know what chemo-brain is. Tim now that you no I,m only 160 lbs. does not mean you can correct me in front of my friends.Boy would we suck as a team playing trivia pursuit.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#59599 12-14-2006 01:50 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | My one claim to fame is as a child I watched a lot of TV with my Dad. Man did he love western movies. Every time I see a John Wayne movie I think of him. Anyways my point is I know a lot of old useless TV/movie trivia. Mark just so you know I'm 150lbs, so no worries there mate. 
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59600 12-17-2006 06:18 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Hey, just checking on you, we havent heard from you in awhile! So how are the taste buds doing? How is your recoving coming along? Would love to hear from you...so be a pal and reply. | | |
#59601 12-20-2006 11:23 AM | Joined: Dec 2006 Posts: 12 Member | | OP Member
Joined: Dec 2006 Posts: 12 | Starting to eat a few things by mouth, but puppy dog is getting the larger portion of it....so nice of her to keep food from being wasted.
Age 51, Squamous Cell Carcinoma, lymph node on left tonsil, 6 wks chemo - 7 wks radiation, treatments ended 12/1/06 (hopefully)....
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#59602 12-20-2006 01:40 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | HD,
She will be well fed by the amount of food you won't eat for some time. LOL I order childrens portions when taking food home and sometimes I can't even finish that!!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59603 12-20-2006 07:21 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Wow, David, what a great idea! I waste so much food, heck i never even thought about ordering kids meals. Thanks for the great tip!!! And Harley, im glad your beginning to eat, what an accomplishment, your starting to heal, great news. | | |
#59604 12-21-2006 02:41 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | David That is great advice. Our whole life we have been programmed for 3 meals per day, People like us should eat smaller portions maybe 6 or 7 times a day.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#59605 12-21-2006 03:11 PM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi Harleydude,
I'm a Pcar guy myself, but have a place in Myrtle Beach and love Harley week.
I think your situation will improve quickle. I was not able to eat for 7 weeks following my treatment. My treatment finished on Dec 6, 2004. It was Jan 28th, 2005 I was able to get some oatmeal down. I found sweets to really stimulate my taste buds. Oatmeal with a generous helpng of brown sugar slid sown nicely. I gradually improved month by month. Now, after two years, my dry mouth is almost all gone. Just a little in the middle of the night or when eating something that takes a lt of saliva, like bread or cake.
Hang in there, I think things will improve rapidly.
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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