#59587 12-05-2006 12:40 PM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: May 2006 Posts: 137 | David, have you tried any of the 'moisteners' like Stoppers 4, Oasis Moisturizing Mouth Spray, or the Biotene Oral Balance Liquid? Brian likes the Biotene and says it allows him to lecture for 2 hours at a time without any problems. There's another one called 'Numoisyn' but I haven't tried that. They all help to some degree, but I still need to carry a small bottle of water everywhere I go.
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#59588 12-06-2006 05:58 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I tried the Oasis spray a few months ago and didn't notice any improvement. Maybe I'll give it another try.
I assume I can get the Biotene at a Walgreens? What about Stoppers 4?
I would love to be able to talk for 30 mins without depending upon my water bottle.
Thanks
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59589 12-12-2006 11:13 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | David - the Stoppers4Dry Mouth really works! Not just for dry mouth but to be able to sleep at night. My son's doctor had recommended the "Ocean" spray which didn't work, and it wasn't until I did a search on this site (top of p.) and found out about Stoppers4 that my son was finally able to get some sleep at nite and what a difference it made. It's over the counter and I got it at Walgreen's for around $5. (Others mentioned were Salivart and Saliva Substitute) There is Biotene gum, too that helps. Regarding taste buds, my son discovered something when he was eating one of those blueberry breakfast bars. He says he sort of has "virtual" taste because when he smells it, the smell goes up his nostrils and towards the throat and helps him to "almost" taste it. Must be true that when we lose one of our senses, the others get stronger. So now, he smells everything before eating.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#59590 12-13-2006 03:27 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Anne-Marie,
I named a daughter Anne Marie after the TV show My Girl and I can't remember the actress' name now but I loved that show.
I'll get some Stoppers4 and it better work!!! LOL I tried the gum a few months ago and it didn't do anything. Maybe I'll try it again.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59591 12-13-2006 04:52 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | David, The nane of the Actress is Marlo Thomas Who is also a gigantic cancer advocate with St. Judes Hospital -- helping children beat this awful disease. Hope all is well David and I enjoy all your posts. Best of luck!
Mark D.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#59592 12-13-2006 12:20 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Yea Marlo Thomas. She was the daughter of Danny Thomas and I believed appeared on his TV show. Now I can't think of his shows' name!! This could go on for some time. Was his show called "The Danny Thomas Show"? He was funny his whole career. This is going way back.
Thanks for the memories.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59593 12-13-2006 02:24 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | I remember it as the Danny Thomas Show, so if that's not the real name please don't tell me I'll start to think I'm senile. It was a great show.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#59594 12-13-2006 03:31 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | I thought Marlo's show was "That Girl"
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59595 12-13-2006 03:31 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 |
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59596 12-13-2006 03:32 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 |
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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