#59505 12-07-2006 04:36 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Tom,
My mom is three years post tx and has neuropathy in her feet and legs. It wasn't easy finding something that made her more comfortable, but after a quite a bit of trial and error she found some relief with a cocktail of Lamictal, Cymbalta and Lyrica. If you haven't done so already, you may want to take a look at the web site neuropathy.org. I found it helpful and was given some good ideas. I spoke with one person who found relief soaking her feet in a mixture of water, asprin and caspian. It may sound unconventional, but who cares if it works. I hope you're able to find some relief.
Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#59506 12-08-2006 06:01 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | linroth - The neuropathy will ordinarily begin DURING tx and then linger. Mine, during tx, was profound. I was unable to pick up a coin from a table top, often couldn't hold on to pieces of paper unless I clamped them between my hands, couldn't work a button into a button hole, etc. Injuries to toes went un-noticed until the blood or the bruise was visible. Now, I am able to type and write just fine. My feet are still a bit numb. If you don't have the symptoms now, you are unlikely to develop them later. Be strong, Tom J
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#59507 12-08-2006 06:05 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Dave, Thanks for the recipe - I'll try it!! Mine feet are rarely painful now, just numb. Hope your mom continues to do well. Be strong, Tom J
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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