I tried the search engine to see if anyone else has experienced this, but didn't find anything. What is happening to me is everytime I look down(move my head to look at floor) I get a tingling type of feeling run down my spine, legs, and even sometimes my arms to the fingertips. This can happen sitting or standing. I finished radiation and chemo in June, had brachytherapy in July of this year. Have an appt. in Nov. with radiologist, and I will ask him about it then. I didn't notice this when I saw him 4 wks out of tx. It doesn't hurt, and I'm not going numb from it. Is it a side effect of radiation? Anyone ever hear of this?? Linda

Oh yeah, I've got it too. It's called l'hermittes and it's a demylinization of the spinal cord -the sheath comes loose- caused by the radiation. It's very unpleasant, but it's supposed to be temporary.

Hello Linroth,
I also haqd the samething. I think it took awhile after treatment but your right every time you look down it like this electric sensation shoots down your spine into your legs. I forget the proper terminology for this but it is some form of neuropothy. Mine lasted for I think about a yr and then it has subsided I still get a sensation every now and then and I'm over 6 yrs post tx.
Was told it is nothing serious. Hope all is well.
Mark.

Linroth,

RileyMc is right -- it's called L'Hermitte's sign and lots of people here have had experiences with it for some amount of time after radiation (and yes, for most people it seems to be a temporary thing).

Cathy

Mine has lasted from year 4 to year 7 so far..... but I got nuked to the max as well.

Thank you all so much for the replies. Thank you for this board, as I am not alone anymore! I didn't even want to tell my family about this, it would just give them more worry. Atleast now I know this happens to others. And I have a name for it. I'll still mention it to the radiologist so he's aware, and I'll just have to see how long it lasts for me. Have a great day!