#59260 10-11-2006 04:46 PM | Joined: Jun 2005 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2005 Posts: 49 | Ok, here I am again. It seems like every thing is going wrong with me this month. I have the muscle twitching and pain in the shoulder. I can't even raise my arm completely up. Yes, I have made a doctor's appt for next week. Now, I have this aggravating pulsing in my ears.It has been going on for sometime now but tonight it seems worse. I can't lay down for this annoying noise. Any ideas on how to get rid of it? Thanks, Mary
Dx June 2004 stage III right tonsil 1 node involved, 70 radiation tx completed 08/20/04, no chemo or surgery, 32 years old and 26 weeks pregnant at dx and tx. & non-smoker and non-drinker
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#59261 10-12-2006 12:28 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Mary, My RO mentioned a permanent "texturing" of the neck muscles due to radiation and I have occasional neck spasms.
Could the "annoying noise" be tinnitus? I would ask your ENT. That can be caused by a variety of things, even if you used to hang out in loud clubs. Chemo can cause it as well but I noticed you had RT only.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#59262 10-12-2006 02:14 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Mary, if indeed you do have tinnitus [which I have lived with for about 10 yrs now] having some soft music or other distracting, but soothing, sound going on in the room will help deflect your attention. It's most irritating for me at bedtime because the room is quiet. During the day and at work, I don't notice it too much. Hopefull you can find a way to gently exercise your arm. Without exercise, it could get much worse [it's that "use it or lose it" principle]. Considering what you went through, it sounds like you have done very well so far. I'm guessing you are a very strong lady. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#59263 10-13-2006 07:00 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Mary, You need to get to a PT for that arm because the problem will only get worse without proper exercise. Mine devleoped into a winged scapula resulting in major back pain. Meanwhile hang from door frames or lie flat on your back with arms over head to help stretch it. Use a theraband if you have one. But get a script and call the PT ASAP.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#59264 10-26-2006 12:19 PM | Joined: Jun 2005 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2005 Posts: 49 | I went to the primary physican yesterday for my shoulder. While I was there I mentioned the ringing and the heartbeat in my ear. Her response was, "that's not totally abnormal." She was not concerned with it at all. I will mention it to my ENT when I visit him next month. Anyway, she sent me to an orthopaedic today. He did not see anything on xrays that would have been caused by injury and is thinking it is tendonitis or rotator cuff tear. He did see a spot on my bone below the shoulder. I have a mri Monday evening and back to his office on Thursday. It will definitely be a long wait. If the mri shows up fine for my shoulder I will start physical therapy. Please keep me in your prayers that the spot is not cancerous. He was not too concerned with it but stated given my history everything needs to be checked out. Thanks mary
Dx June 2004 stage III right tonsil 1 node involved, 70 radiation tx completed 08/20/04, no chemo or surgery, 32 years old and 26 weeks pregnant at dx and tx. & non-smoker and non-drinker
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#59265 10-26-2006 02:45 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi, Mary, It sounds like you are getting good care to address the shoulder problem. The ear ringing is something you just may have to live with. I actually had one Ear Specialist tell me that there is a theory that the noise is actually produced in the brain- not the ear itself. Boy, mine seems to come directly from my ear :rolleyes: [ i.e. I didnot buy what he was saying] Anyway, that noise is disturbing but manageable. Good luck with the shoulder. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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