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#59257 10-11-2006 12:19 PM
Joined: Jul 2006
Posts: 446
"OCF Canuck"
Platinum Member (300+ posts)
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 446
I'm 3 weeks post radiation( 30 IMRT) and 4 months post surgery ( madibular resection 40%, jaw rebuilt with fibula, free flap donation from forearm for inside of the mouth, neck and shoulder disection 56 nodes)

The past week or so I have been experiencing increasing episodes of pain in the opposite side of my mouth ( the right hand hinge point). They come on very suddenly, and are very intense. Occassionally the pain eases with a bit of rotation of my jaw, or opening and closing my mouth slowly, but it's really painful. Anyone else experience anything like this?
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
#59258 10-14-2006 01:28 PM
Joined: May 2003
Posts: 928
"Above & Beyond" Member (500+ posts)
"Above & Beyond" Member (500+ posts)

Joined: May 2003
Posts: 928
Wayne
I dont have any advice for you but wanted to let you know we care.
Hopefully your Doc has helped you with your jaw problem by now.
Take Care
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
#59259 10-14-2006 02:13 PM
Joined: Apr 2005
Posts: 2,676
JAM
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Wayne, can't give you advice, but can offer sympathy. This happens to John alot also, especially if he coughs, sneezes or opens his mouth a certain way. He'll press hard on the spaiful spot and it will subside pretty quickly. He has a fair amount of facial swelling due to lack of drainage[ missing lymph nodes] I think that, plus the left over effects of rad tx. exacerbate the jaw pain. Try to be very careful about how you open your mouth or turn your head. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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