#5915 08-21-2005 09:23 AM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 | I am slightly disturbed-I have noticed that there are more than 2000 members and obviously, not that # are involved in active topics. Do you find that most people finish their treatment and get better and move on? Or do they not respond because they are no longer with us in this world? I hope it's not the latter-just curious what the trend has seemed to be. I get nervous when I read very old posts and there are no recent posts. Do you know what I'm saying? 
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#5916 08-21-2005 10:29 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Well for one, I'm still here.
Gary, Mark, Minnie, Dannyboy, Rosie, Eileen, Uptown, Brian, they are all still here, (ok those of you i missed I'm sorry)I could name possible eight who didn't make it. So lets presume they rest have moved on. The newbies bring in the real world so we all move on together.
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#5917 08-21-2005 10:49 AM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | I think most message forums are like that. Mine, for instance has at any given time over 1000 members, but around 50 post on a continual basis. People move, some join and forget they joined, some find help elsewhere, their pcs crash and burn. It can be any number of things.
Blessings,
Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#5918 08-21-2005 10:54 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | I'm still here if that is any help. Hello Helen and Barb and ShawnaMargo. Hope all is well.
Cathy :rolleyes:
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#5919 08-21-2005 11:57 AM | Joined: Sep 2003 Posts: 153 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 153 | at least one of us has had computer updates that caused multiple accounts with different ID's and member numbers.
let's see, who am i today?
my wife likes lance.
cu,
larryb | | |
#5920 08-21-2005 12:14 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Some move on after trearment, they don't like to be thinking about cancer all the time. Some remain core posters that want to help all the new members just starting treatment. Some don't make it.
Most of the core members are dedicated to the website and want to make sure it's avaible free for anyone for a long time. Brian & Ingrid Hill seem to keep it running but most of the cost is theres. We try and have fund raisers to help defray some of the cost but it's a battle that never goes away.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#5921 08-21-2005 01:06 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | And some regular posters just get burned out answering the same questions over and over (PS the archives probably has already answered every question about cancer known to man at least 20 times over).
Many here don't even realize that there is an OCF home page (click on the link on the bottom of this page) with tons of information about recipes, treatment, scan modalities, recent news, books, references, etc.
Brian has worked VERY hard to make this a "one stop shop" for everything oral cancer.
And like Danny Boy said, some just want to leave this chapter in their life as far behind as possible. Adding to that, some just get busy living life again. Sadly, there are deaths on a regular basis and that can be hard for some to face as well.
I have professional counselor training and others just have a gift for helping people.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#5922 08-21-2005 01:37 PM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 | Whew, I feel mucho better.
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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#5923 08-21-2005 01:45 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hello.....I am still here.....SMILE!!! Hi ALL. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#5924 08-21-2005 01:47 PM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | I am still here and check in frequently. I rarely post because I haven't had the experience of most of the regular posters. I chime in when I can help or relate.
I am someone whose experience with cancer gave me the push to move NOW to the part of the country I have always wanted to live in. Lots of adjusting to new new job, neighborhood, setting up new routines, finding the dentist, the internist, etc.
I have been blessed by this board in more ways than can ever be expressed.
Sincerely,
Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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