#59192 10-16-2006 10:42 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | David,
How goes the taste...has it improved since you first posted this?
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59193 10-16-2006 01:05 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tim, I had a slice of pizza the other day. Not the pizza chain I like but beggars can't be choosers. I tasted the meat, pepperoni and tomato sauce but the cheese was a little disappointing. I still don't favor eating over the VHC.
How are you feeling? Have you seen any improvement since our last conversation?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59194 10-16-2006 01:59 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | David,
I'm doing OK I guess. I'm 11 days out; I still have quite a bit of throat pain/discomfort when I swallow. I still have a 50 patch on but will drop that to 25 when this one comes off.
I've been eating by mouth the past couple of days and I even manage to get in 1 or 2 VHC everyday. I haven't gained any weight back, but eating is tough when you can't taste it as you know.
The thick mucous has let up a bit but it's still here. My blood chems were checked today and they say I'm fine now. I may get my PEG out at the end of the week. I can't remember did you say you had one? If so for how long?
Thanks for checking/asking
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59195 10-17-2006 12:14 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Tim,
The discomfort in my throat lasted about 3 wks for me.
If you want to gain weight you can estimate the number of daily calories you need and use the VHC to get there. To add 1 pound per week you need an extra 550 cals per day per the web site I visited.
When my mucous started to let up, that's when it finally went away altogether. Then comes the dry mouth which ain't that much fun either and lasts alot longer.
I had a down the nose kind for 10 days. It helped me get over the hump, so to speak, and I pulled it out myself.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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