#59143 03-30-2007 11:19 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Congrats Linda. I hope that all your future ck ups will be identical to this one.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59144 04-19-2007 12:52 PM | Joined: Apr 2007 Posts: 1 Member | | Member
Joined: Apr 2007 Posts: 1 | Hi all. I am new here. I will be one week out of imrt tomorrow. It is still pretty miserable for me. My toungue is in schreads and my throut also. Do not have feeding tube and am stuggling with liquids. using eye dropper at the moment to get them down. Dr. didn't tell me it wiould be this painfull. Said I would start to feel better in 5-10 days after treament. Well this is day 6 and I feel worse that ever! Pain meds don't touch this mouth and throat pain so they are useless to me. I live on the lidacaine swish!!
But I'm pretty upbeat so far and do have alittle more energy today, we'll see what tomorrow brings.
This sight has been a God send for me. Thank you all for sharing.
DX on 11-15-06 surgery on 1-9-07 removal of left upper jaw & tumor in sinus area. Flap & artery from wrist to mouth. IMRTx35 completed 4-15-07
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#59145 04-19-2007 01:07 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Little girl,
Welcome and sorry that you are here, but this is the best site for answers.
Please post this again in to the introduce your self thread or start another thread in after treatment issue. If not you may get lost in someone else's topic. Just look at the bottom of a main forum page and click on new topic. Once ther fire away your questions and thoughts...
As far as feeling better, I really didn't start feeling better until the end of week 3.
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59146 04-19-2007 01:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Littlegirl, please follow Stoj's instructions so we can keep up with you  Your attitude sounds great! There will be lots of people here who will respond to any questions you have or try to help you over "hurdles" along the way-and there may be some- so stick with us- and keep looking forward. Can you put your diagnosis and treatment in your signature line ? Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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